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please can anyone advise what i can try to lead normal life

Posted , 9 users are following.

amanda2966
amanda2966

hi. ive got very severe cfs m.e. im bedbound much of the time and the days i can walk(slowly) for 10-  15 mins next day i suffer hugely. legs ache so bad they throb, im in bed and sleeping a lot. wondered if anything i can try that may just miracle a huge difference !! i have no sex life. well, thats impossible and my ex husband of 17 yrs walked out on me and found someone that had great health. that really cut me up. does anyone know of anything i can try. im willing to try anything. my diet is good. i eat little and often and i take very high B vits and other vitamins that i was advised but i see no difference even though been on them years, thank you for taking the time to read my article.

2 likes, 20 replies

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  • olivetree
    olivetree amanda2966

    Posted

    Hi Amanda.

    Sorry things have been and continue to be so difficult for you, both with illness and the husband's abandonment.  Shock, stress, grief etc often seem to impact on ME symptoms and make things worse sad

    Magnesium is supposed to help with the pain. A friend of mine uses a spray variety which seems to work well for them as it absorbs into the skin and can be localized to target particular areas. It's something I intend to try just as soon as I get it together to buy some.

    Another thing is that you say you walk for 10 -15 mins on days you can and then suffer greatly. I would suggest cutting that right down to maybe 3 - 5 mins and see how it is then.  If you start to improve then build very gradually up from that, perhaps by trying it more regularly to perhaps every or almost every day so your body becomes accustomed to it. If/when that seems managable then try upping the minutes by only 1 - 2 and slowly increase over weeks. Try not to rush it. If you feel you are getting worse again drop down a bit. So tedious I know!

    Be as nice as you can to yourself and hope things begin to improive for you.

  • Retriever
    Retriever amanda2966

    Posted

    Fed up just getting up and sitting in the chair. To day I walked the dog for an hour, can't tell what effect it will have until later . Will probably suffer but then I will know I can't do this walk every day. Up to now I have protected myself by not doing to much, I have not pushed it , have I been over protecting myself. The next few days will tell
  • Retriever
    Retriever amanda2966

    Posted

    Sorry but computer decided I had finished. So far I don't feel any difference from walking the dog. 7-50 pm now so thats a good 10 hrs. I still don't feel well but somethings are better. The fog seems less, not so many hot flushes, So am I handling this better who knows. I am convinced your mental condition does effect sleep and the hot flushes, I try to go to bed when I am relaxed not what ever the clock says
  • Retriever
    Retriever amanda2966

    Posted

    Got up this morning and suffered as  I thought I would. Going shopping now and then back to bed. What a life but I know there are those who would be glad to go shopping. Keep your chin up

     

  • Retriever
    Retriever amanda2966

    Posted

    Well still feeling rough. Getting bad feelings, where I am going from here I can't be sure. good Luck
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