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PLEASE CAN ANYONE HELP IM DESPERATE!!

Posted , 6 users are following.

luckymun
luckymun

:cry: Hi im looking for help regards my injury that i sustained 20mths ago whilst at work. Im not looking for medical advice but just want to find out if anyone else on here is suffering the same symptoms and problems as me??

The original injury was,slipped disc and severe muscle and tissue damage. I have now been told that all my nerves are shattered. I have pain all day everyday,it can differ in terms of how aggressive it can be though....so some days although it is apparent the pain is there i can cope and just about get through the day.

Where other days are AWFULL and the pain is HORRENDOUS and to the point it makes me physically sick and totally disables me. All i want to do on those days is sleep and never wake up!!

The medication i take is 100mg Tramadol 2 lots... 4 times aday...Pregabalin 150mg 1... 4 times aday diazepam 10mg... twice aday Venlafaxine 75mg...2 in the evening...and i have recently been taken off Amitriptyline which they replaced with the Venlafaxine!! I also take lactulose.

I have lactulose because my bowel and bladder have both been affected since the accident.

They feel numb and i have had episodes of wetting myself as i can not feel that i need to go. Or the opposite where i have been so blocked because my body is not telling me i need to empty my bowels, it has been so bad at times i have had to remove my own stools :oops: which sorry to have to write about espec if your eating your dinner but iit is relavent to my situation.

So i tell the docs and hospital and all i get is a pin stuck into my arse basically HA!!.i tell her its numb iv no sensation and guess what....THEY DO NOTHING!!

I am sent home then given Lactolose which...yes helps me to go but my bowels and bladder are still not functioning correctly but no one will help!!!

I am now registered disabled and use crutches to get about. If honest i should use a wheelchair but dont like to...call me stupid but thats just me!

I have been given an epidural to help minimise the pain...to no avail!! I was then given a dorsal root block which after about 2 weeks in to recieving it i did get some respite and although i still had a little discomfort i felt alot better in myself...but my consultant has told me he will not allow me to have anymore GREAT!!

I will also ad i had intense physio at the beginning of my injury again to no avail!

My left side lower back and left leg are the only places i suffer pain,i am fine elsewhere really to be honest...although some days i will get what can only be described as a band that wraps around my back and tummy and that too is agony. In my left leg they say my sciatic nerve is damaged and i also have muscle wastage.

My consultant belives my injury to be healed...but this is not from any MRI proving this it is merely guess work and that the problem is now my shattered nerves!! His also exact words were to me...i have no idea how to treat you,infact there is no treatment for you. so what we will do is bring everything to the party and HOPE FOR THE BEST...Hardly reassuring is it!!

I struggle with day to day chores and my care and that of my children is shared between my husband and best friend...who may i add have been MY ROCKS!!

My doc and consultant have written to say i will never return to my job infact they see it hardly likely i will work again...how can they make such final statements when i am only 20mths in?? Also im only 31yrs of age i want to work i want to do something with my life...and yes ok at this present time there is NOWAY i could go back i struggle to just put my trousers and shoes on or fill up a kettle...but 1 day i want to work again!!

When i saw my consultant on monday he siad he now wnats to send me to Rhuematology when i asked why his reply was....that is not for me to be concerned about all i need to do is make sure i attend the appointment...MAN HE MAKES ME MAD!!

He would make a great politicain as he is full of himself,he never answers a question and instead tries to baffle me with medical science. He is arrogant,pompus,selfabsorbed,a real character...but other then that he is a CHARMING GUY ha!!

I have been given an appointment on the 1st september as i complianed and said i felt like he was belittlling me and was very intimidating. I was not happy at the fact i felt he was not taking me seriously and that all the things i experience were in my head....because at the age of 31 with 2 beautifull girls and husband i really do not have anything better to do with my time then breath the same air as that prat whilst he insults me have i??

It is so bloody hurtfull that these so-called professionals treat us as if were all making it up and swinging the led THE IDIOTS!!

Anyway sorry for going on so much...i think you can probably work out im really naffed off at the moment over all this!!

All i want,not just for me but for all of us it to be treated fairly and diagnosed correctly so that i can get the correct care and treatment...are we asking too much??

I would LOVE to hear from anyone who has similar or even the same injury,treatment etc...i feel so alone at the moment which is why im so glad i came across this site as im sure out there someone is reading this and relating to what i am saying

So PLS PLS get in touch i really need your HELP!! Kindest regards Jaimie x x

1 like, 5 replies

5 Replies

  • Guest
    Guest

    Posted

    Hi Jaimie

    I just read about your condition. I feel very sad. :cry:

    For many medical problems modern medicine has not been able to offer cures. However complemetary or alternative medicine may be a route.

    I can help you. I am an energy healer. I have resolved many problems of many sufferers for whom medical science was to no avail. Some of my patients have had back problems and had their problems resolved. It seems your original problem has led to other problems.

    Let me explain how I treat. I place my hands on your body through which my healing energy runs. This healing energy then begins to heal your body. It is pure eneregy. A session last about 20-30 minutes.

    This is not faith healing nor spirtitual healing. My healing does not require any kind of faith or positive thinking. It works whatever the values or attitude of a patient may be.

    If a problem is recent then it can be resolved quickly. However yours is a chronic problem which would take longer.

    If you wish to discuss further then email me on *** at ***

    Best wishes to you.

    Mahendra Shah

    [color=green:daf23547d4][size=9:daf23547d4][b:daf23547d4][i:daf23547d4](Sorry but Patient Admin have removed either a telephone number, an email address, and or web address, from this posting, as it is the policy of Patient UK not to publish these on this forum.

    If you wish to communicate directly with people, you should register, for free, with the forum (click Register in the menu list below the green banner above). You and other registered members will then be able to communicate with each other via Private Messaging (PM) or e-mail.)[/i:daf23547d4][/b:daf23547d4] [/size:daf23547d4][/color:daf23547d4]

  • Guest
    Guest

    Posted

    Hi Jaimie, I too suffer pain of intense magnitude and used tosuffer daily. What I did was got myself prescribed a good opioid painkiller, took it totally as need be, every 4 hours, no less, and concentrated only on pain relief. I came to the decision I'm not going to kid myself that I'll improve cause I'm not. So lets go for total pain relief and have a bit of pain remmision and enjoy the rest of my natural. I have taken strong painkillers ever since, took them to get possible effect, and have had added an extra Analgesic to enhance the one I'm already on.

    I think I made the right decision ie 'its not getting better so make like comfortable without pain' thank the Lord it works.

    Take care.

  • FACEBOOKER
    FACEBOOKER luckymun

    Posted

    Hi Luckymum I really do feel a lot of empathy for you . From pushing a heavy trolley at work (NHS) to having sciatica and being told you couldn't have picked a box up correctly! I know how incompetent the NHS is.  From numerous nerve blocks that didn't work to an operation to release the trapped nerve which resulted to me now being registered disabled and the consultant throwing my file in the air and declaring he didn't know what to do. So off to the Pain clinic for multiple root blocks that have caused me to feel stiffer and more painful than before.

    I've had problems with my throat since March after telling me it was just my gland to an urgent referral to ENT. I now have problems with speech, chewing and swallowing and smiling/ laughing. I have a Maxillofacial appointment next week and after a barium swallow I have been told I've also got to go to Rhuematology. So I'll have to wait for that appointment so I can get a diagnosis, this has been ongoing for the last six months! Meanwhile the rest of my health is getting poorer. 

    Unfortunately all we can do is write down a daily list of what is going on with our bodies, where the pain is, what you were doing, what medicines you have taken, even what you have eaten as this can affect your wellbeing. Fill yourself with as much information as you can on your conditions.  My physio refused to touch me after the operation but I have pushed myself to do as much as I can.  Keep your mind occupied, join an online group like facebook or see what other discussion forums are out there for you to get involved with. Anything to take your mind off what you can't do for something you can do.  

    I have been left (I didn't set it up but was interested in its aim) a facebook group.  I help my community talk to official departments that they are not confident to do. I organise litterpicks, I can't do them but I can go and set them up. It keeps my mind busy and if I don't feel well I don't have to go out. Join your local disability forum and meet others you will be surprised how many other young families learn to cope and it will do you good and you can make new friends even if they are only cyber friends.smile

    Stay in there Jaimie and don't give up and don't let it eat you up. Face each day with a smile and an aim to get the most out of your doctor appointments that you can - take someone with you but first discuss with them what you want to know out of your appointments- they might just remember something you had forgot to ask!

    Oh I might have come over a little eratic, I have been on morphine, paracetamol, amitrytiline, gabapentin drugs for the past 18months and now ones to keep my throat open and its late so think I might need a top up!  And most of all Jaimie remember there are those that are worse off than us even if we don't feel there is!

    Please get back in touch because I would like to know how you are getting on. Take care and all the best confused x Jeanette x

  • marshall71
    marshall71 luckymun

    Posted

    Say one thing the NHS is crap if you have chronic back problems I've had a pain in my left rib cage since last nov and not one Gp or physio has checked me out and I've seen 5 Gp's and had physio the NHS is free because it's rubbish  you found that out with you go into the system 
  • lindagkelly
    lindagkelly luckymun

    Posted

    Hi Jaime

    I just came across your postiing from over a year ago.  I was wondering how you are doing now and what medications you are on.  I have nerve pain too and read that gabapentin and amitriptyline work well together to help with this pain, but then I checked the interactions between these two and taken together they cause increased drowsiness and fatigue and confusion, etc.  Have you checked the interactions between the medications you are taking? How are you doing now?

    Linda

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