1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

please can anyone help me find an answer

Posted , 7 users are following.

roger2011
roger2011

Hi all , i dont know if anyone can help me but here goes, i have for quite a while now been in some pain with my knees,ankles and elbows  , locking up, cracking, and being extremely hurtful . I have been to my doctors on a few occassions and been told its just an age thing, i have had operations on both my knees (arthroscopy), I am in constant pain or a state of ache depending on what i am doing at the point of time.

My mother suffers from fibromyalgia and has done for many years , what my question is , is is it hereditory? and how can i be tested for this if my doctor just constantly says ists an age thing??

Some days i cant get out of bed without pushing myself through severe moments of pain, and some nights i cant sleep due to my legs aching and being n pain , i work as a on site mechanical fitter but ive done this since i was 16 and im now 43 so its not like a change of job has caused me to be like this .

0 likes, 12 replies

12 Replies

  • sarapainfree
    sarapainfree roger2011

    Posted

    there is no actual test for.fibro they do a rang of test on certain areas of the body and blood test etc I been suffering for 2years and only just got dignosed with fibro all my test and scans came bk normal they do a number of things to outrule other things first I would see a new doctor and keep on at them they then send to see a specialist this is a lengthy process as I say 2years iv suffered and now attending a pain clinic as that's all they can offer to help u help your self day to day and give u medication but there's no cure good luck
    • roger2011
      roger2011 sarapainfree

      Posted

      thank you ill try that, its just getting to the stage where im in pain on a daily basis and nightly basis for that matter and the cold is killing my joints im so sick of feeling like this . once again thank you
  • gill50535
    gill50535 roger2011

    Posted

    Hi roger, ask to be referred to a rheumatologist. there can be any number of reasons for chronic pain and as far as i know fibro isnt hereditory. If you have an unhelpful GP is it possible to see a different one?.. 

    But a rheumatologist is who diagnosed me and everyone i know with fibro.

    Good luck. 

    Gill

    xx

    • roger2011
      roger2011 gill50535

      Posted

      thanks gill i feel they dont seem to know the answer so they just say its age related its annoying me so much as i said before im in pain on a daily basis and nightly basis for that matter i just need to know what is causing it and if there is anything i can do to ease it

       

    • gill50535
      gill50535 roger2011

      Posted

      i would definitely try and see a different doctor and get a referral to a rheumatologist. It sounds like you are getting no where, like sarapainfree i was suffering for 2 years before i got diagnosed and although the meds i'm on help in certain areas no amount of pain killers stops the pain altogether, it just takes the edge off to make it more comfy.

      But a rheumatologist is the way to go. 

       

  • sarapainfree
    sarapainfree roger2011

    Posted

    no problem fibro does get worse in the cold weather everyday I suffer with pain swollen muscles hope u can get some help and find out what is causing the pain
    • roger2011
      roger2011 sarapainfree

      Posted

      its horrile in the cold as i feel like my shins have splinters in them , my wrists hurt and only when i crack them does the pain ease for a while. its getting silly now

       

  • kaz_40
    kaz_40 roger2011

    Posted

    Hi Roger2011 I was diagnosed with fibro in 2014 after 10 years and many tests seeing every specialist you can think of. My dr finally refered me to see a rheumatologist its they that diagnose fibro after other conditions have been ruled out. The rheumatologist I saw sent me for blood tests bone scan and did a pressure point test on different areas of my body. Their are 18 in total I got the full 18. when all ytests came back it showed low in vitamin d. so had tablets of dr for that. Rheumatologist ruled out rheumatoid arthritus and said I had fibro. some one I know who has fibro her mother and brother have it too.fibro may or may not be hereditry rheumatologist should be able to answear that. see if your dr will refer you a rheumatologist and mention to dr about your mum having fibro. Take care 
  • martinarvelo
    martinarvelo roger2011

    Posted

    To suggest it is just an 'age thing' at 43 is an insult to anyone's intelligence. Your doctor obviously doesn't want to bother to find out what is causing your pain. I hope you're able to see a different doctor with a more sympathetic approach to pain, which is so debilitating. 

     

  • pollmadoll64
    pollmadoll64 roger2011

    Posted

    You need to ask your GP if you can see a rheumatologist. I wasted two years going to Neurologists etc and being misdiagnosed. Finally 6 years ago I was finally diagnosed. Plus I have had shoulder surgery which the Fibromyalgia has had a delaying effect on my recovery.
  • deb97936
    deb97936 roger2011

    Posted

    So sorry to hear of your strife/struggles...   We all understand what it's about and sympathise.   Only thing I know is, they say Fibromyalgia can run 'in clusters' in families...   As, what ever it is for some folk that makes them susceptible to it is more pronounced in some folk than others..   NOT to be confused with folk who morph into the condition due to physical trauma's of the spine/CNS.  I'm not sure what the Research is on this, but there is an overlap obviously.  Because spinal/CNS compromises/trauma also show the same symptoms as someone developing Fibro/CFS/ME ...from an ankle sprain, broken limb, a surgery (anaesthetics), and those who had suffered mental trauma/s PTSD.  Then there are also those who have suffered major Fevers, affecting the brain/spine also.

    The one thing in common is that certain operative 'brain piece' that triggers the negative aspects over our body/s.  Researchers are getting familiar with the neck/head junction, the spinal cord that connects up into the brain being a common issue.

    Fibro/CFS/ME are one of the same now the researchers have noted, due to all the overlapping issues.  My guess is, it's just boils down to how the original conditions manifest to start with, as to what condition label you'd be given...CFS or ME or Fibro..  

    YET most folk either have all the condtions issues, or some, whilst others morph over time to encompass ALL the conditions issues. Hence why it gets confusing for doctors to....   So really speaking if you have Fibro, you will have the overlapping ME/CFS issues...because Fibro does.

    Reumatoid Arthritis sufferers also can have Fibro, and it's fellow labels.

    MS groups vary in their conditions, but also can be a sufferer of Fibro...and all it's fellow labels...

    There are other illness groups that can morph into the Fibro condition..with all it's fellow labels....

    NOW there are researchers wondering about our Fibro and it's fellow labelled conditions and Parkinsons.  Due to the area in the brain that they suspect or have found involved.  It has been found that Fibro brains do differ and over time show signs of shrinkage...  (eek)

    Get to a very good Reumatologist, maybe the same as your mother used/es...  

    Or if not the same, get a Reumy specialist who is known to be Fibro knowledgible, and tell him your mother has lived with the diagnosed condition herself for what ever number of years.  

    All the very best going forward... gentle hug

  • Lillychiff
    Lillychiff roger2011

    Posted

    I know they say that fibro isn't hereditary, maybe that's true? But my maternal grandma had a under active thyroid, which I have.Also. she had fibrositos ( think I spelt it wrong!) which they called it years ago before they invented another name for it! No one else in the family has these..so who knows? Let's face it ,what do they know anyway??
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.