Please could I get some advice...

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I hope someone can help me. I've been getting all the symptoms of underactive thyroid since 2010. I'm constantly cold, tired etc. but my last thyroid test came back as normal at 2.55 (this test was in May 2010). I've just been back to the doctors today because I've been trying to lose weight for my wedding and I just don't seem able to loose any despite eating a healthy balanced diet and doing exercise. I do eat naughty food too very occasionally but not regularly, certainly not enough to cause the weight gain I've had. Based on my symptoms my doctor is fairly convinced I have hypothyroidism and is sending me for more blood tests next week. I'm really worried that these tests will come back normal but that I'll still have all the symptoms. I'm so fed up of being cold and tired, and of not eating much but never losing weight. Has anyone experienced this and what did you do?

Any help is appreciated.

Thanks, smile

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5 Replies

  • Posted

    Never mind blood tests!! If your doctor thinks you are hypo then ask for a referral to an endocrinologist!! Try something like Dr Foster to get info on the ones in your area or advertise on any thyroid website / forum for endo's who go by symptoms not blood results!!

    P S GP's will only do a TSH test which is not at all revealing for hypo, if you go to an endo they can generally request more blood tests such as free T3 and free T4 which helps to find out where you are but the bottom line is you need someone who will listen to you and prescribe what you need NOT what is cheap!!

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  • Posted

    Thank you! I'll try some forums.What is Dr Foster?

    I think the thing I'm most worried about is that if my tests come back negative or if I see an endocrinologist and they don't think I have hypo then what do I do? I'm not sure what other options I have. This happened before - I saw an endocrinologist for one appointment and he just referred me back to my GP who did nothing. Ideally I'd try a small dose of thyroxin and see if it helped, even if my tests are normal. Does anyone have experience of this?


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  • Posted

    Imogen, you have my fullest sympathy. Like you I had all the symptoms of hypo FOR YEARS, but because of the way Docs are so tied up in knots about testing, diagnosing and treating was left to rot in a half life. Finally I just tipped into the right level that was acceptable at the time (over10) and was put on thyroxine. I am far from 'back to normal', as being 'normal' was in my early teens and I am now 56, but at least all my organs seem to be working properly now, (apart from my skin and maybe my brain,) and I am feeling a million miles from what I did.

    Please may I suggest to you that you join two very good forums, Hypothyroidism and Hypothyroidism UK pages on Facebook. Use just those words, where you will find a wealth of info, help, support and up-to-date research links to help you understand this disease, testing options and treatment. The former page is international which will give you a really good overview of the condition and options globally, and the latter particularly good for our peculiarity in UK of NHS, testing and treatment. May I also recommend Thyroid UK website aswell, which is a wealth of almost all you need to know again from the perspective of the UK, and is a charity that works and fights for us the sufferers.

    All my sincerest prayers and wishes for you. Please let us know how you get on with your appt. xxxx

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  • Posted

    Why is thus inferior testing and treatment allowed to continue? Why?
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  • Posted

    Sorry that should be Hypothyroid UK (NO ism) xxxx


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