Please help.. 22 year old LS sufferer
Posted , 8 users are following.
This is my first post on here so firstly thank you to all of you lovely people who post advice on here!
I was diagnosed with LS 6 years ago when I was 16 following a biopsy. Used dermovate and hydromol and things seemed to improve... to the point where I completely forgot to maintain my treatment. Last year I had a couple of yeast infections and after examining myself I realised my labia seemed to have shrunk. I had one small white patch and a little itching. Began using the dermovate again to prevent the fusing and I have made so many others changes over the last few months but the LS has flared up really badly and things just seem to be getting worse.
I wash only with hydromol ointment (I'm thinking about purchasing the emollient wash too), wash my hair in the sink, I wear only 100% cotton underwear, no tight clothes etc. but it just seems to be getting worse. the clitorus is now fusing and there is a small red lump on my clitorus. I have a doctors appointment in a week's time but it's a telephone call due to Covid. Last time I saw my doctor a couple of months ago she said it looked fine but it's got so much worse since then and I feel like GPs just don't take it seriously. I am hoping I can get referred back to a LS specialist.
Can anyone advise anything else that would help? I have seen baking soda baths have helped lots of people so I may try that. I have also stopped taking my pill as I thought that may help prevent me getting so dry down there. I am so young and I am terrified of how this is going to get worse. I'm not in a relationship at the moment and haven't had sex in almost a year due to fear of whether I look normal or if it's going to hurt. I have added some photos of what my labia looks like now and also a photo of the white patch which is the worst part.
Thanks so much in advance x
xx
0 likes, 18 replies
mel34062 olivia90603
Posted
hi Olivia, im so sorry your going through this and please know your not the only one. i was diagnosed when i was pregnant with my second baby and being 33 years old now its hard to live with this so i cannot imagine how your feeling. this forum is amazing and a huge support system. at the beginning of the year i had flare ups rhat still have not ended. my newest one was yesterday after treating the one prior to that at a different location. mine are no longer itchy and its now burning and stinging discomfort.
by looking at your pictures, mine looks like that due to the clobetasol. it causes thinning of the skin which makes it looks transparent like. when i went to see my OB beginning of Feb it looked like that ans ahe said it was in remission. remission in her terms was no redness, inflammation and the white will always be there. she said its like a trophy mark that is a sign you have LS. overtime if remission goes well, it will slowly go but know when it flares it resurfaces.
in the meantime, do sitz bath, soak and coconut oil to sooth it. i hope you find relief.... i know its hard and the hourney might be long but im atill learning about my condition and how to manage it.
olivia90603 mel34062
Posted
thank you for your comment and advice Mel! I have times where it feels better but the white is still there, so I never really know whether this means it is in remission or whether the white will always be there or if it should disappear. Since I wrote this post things have definitely improved, my doctor was lovely and advised me to try Betnovate oinment twice a day (stronger version than the Betnovate I used before) and I have also been taking soda baths every couple of days. I also use Hydromol as a barrier and Cetraben ointment (the cream stings me) to moisturise after every loo trip which has definitely helped as before I only did it every now and then. My GP is referring me to an LS specialist when covid is over, the same lady who did my biopsy years ago, I'm now thinking about switching back to Dermovate but I just don't know. I know it can't be good to keep switching between them. I'm trying to cut out sugar but I have no idea if this is really having an effect or not. I probably need to cut out alcohol but finding this difficult especially in lockdown!! Thanks again xxx