please help

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My daughter is 4 and said she felt unwell on the Friday. By the Sunday night she had a rash that looked like chicken pox but by Wednesday it was purple and stuck together. She went into hospital that night and was diagnosed with HSP her ankles are swollen and she is very pale. I need to know to to ask for help her legs to night are swollen again and it looked like it was clearing up. On inspection she as got new spots on her legs and more swelling. She took thread worm tablet a few weeks ago as her sister had thread worm, I don't think she did but had to give her a dose to make sure as you have to treat all the family. What can I do to help her I feel physically sick with worry looking at her.

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  • Posted

    Hi I would take her to see the GP. Hope she feels better soon. I also have a daughter so I can understand the worry, but she'll be fine just consult your doctor if you feel concerned about her situation. That's what I would do. All the best
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  • Posted

    Hi there. My son had HSP a year ago when he was 5. I was worried sick. We ended up going to a pediatric rheumatologist recommended by our pediatrician. She prescribed prednisone because he was vomiting. It was amazing how much that helped though steroids aren't great to take for too long. He was on the medicine for a few months with a tapered dosage. If you have any questions let me know. Hang in there. I know how awful this feels but she is young and HSP apparently isn't as bad when kids are young. Take care. Jeanna
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  • Posted

    Hi..I totally understand your concern, my daughter is 19 and it currently on steroids to help with swelling regarding hsp. This is her second major outbreak /crisis not sure if those words are correct but it's been pretty distressing, not including minor outbreaks after her first diagnosis 5years ago. f your struggling with support ask for her to be referred to a specialist, I believe great ormond street, or addenbrooke's Cambridg, that's where I've pushed for my daughter to be referred to.
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  • Posted

    Hello nicola14247.  I feel the same way.  My 7-year old was diagnosed with HSP last week after her spots became larger and bruise like.  She was not unwell or anything but we took her to the doctors because of the bruise-like rashes.  We were referred to the child assessment unit immediately for blood and urine tests.  Since she's not feeling unwell, we were discharged after several hours and were told that it will go away on it own after a few weeks.  Her joints started to swell and painful too a day after that visit to the hospital and new spots appearing. More swelling and pain followed.  We've phoned 111 a number of times just to make sure that we are not missing anything in terms of monitoring.  We were asked to monitor her urine every week (we were given a testing kit) for about three months just to make sure that her kidneys are not affected.  Today, she still has the marks of the bruises and new spots are appearing.  But she's walking properly now and we are crossing our fingers that she we will be able to go back to school next week.  My advice is, if you are very concerned, just follow your instincts, call your GP or 111 to be on the safe side.  I hope your little one gets better soon.  I was worried as hell with mine.
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