1. Community
  2. Diabetes and hormone problems
  3. Hypothyroidism

Please help

Posted , 5 users are following.

sarah63412
sarah63412

Hi

I'm looking for some help and advise as I'm at my wits end

When I was 8 I was diagnosed with an underactive thyroid ( mother grandmother and great grandmother also diagnosed)

To cut a long story short when I was in my early 20s a specialist to me it was a misdiagnosis

Fast forward to last year where I was tested again

Extreme tiredness alopecia areata anxiety depression dry hair flaky nails constipationalways cold and most importantly to me very irregular periods

I gave birth to my daughter in April 14 after trying to conceive for some time ( previous miscarriage) and since then I have had regular periods up until about September time. Between September and now I have only had 2 periods

The doctor tested thyroid levels which came back borderline so tested again a month later where all was ok

Still no period and desperTely trying to conceive again with all previous symptoms

I'm back at the doctors today as I'm at my witts end

Is it possible to be borderline underactive and still suffer all of these symptoms

0 likes, 6 replies

6 Replies

  • Jill6969
    Jill6969 sarah63412

    Posted

    Hi Sarah - It is possible to be hypothyroid during preganancy and recover. This happened to me but I became fully hypo years later. If you are borderline you might be able to assist your thyroid with the right supplements. Its known that we need vit B12, vit D ferritin and folate to be in the top of their ranges for our thyroid to function adequately so ask your doctor to test these for you.

    Also doctors are obsessed with numbers in 'ranges' without treating by symptoms. Its possible that a low dose of levothyroxine would be appropriate now.

    • sarah63412
      sarah63412 Jill6969

      Posted

      Thanks Jill

      I have been back to the doctors today but they won't re test me

      I will certainly give those vitamins a try

  • tereseV
    tereseV sarah63412

    Posted

    Absolutely. Everybody is different. Even though you are borderline in the guide, for you personally, you can be hypo. If your present doctor is not getting you where you want to be, find one who will. I went through five doctors before I found the one that helped me

    what is underactive to one doctor is not underactive to another. The "within range" used to be .50-5.0. Two or three years ago that range changed to .30-3.0 indicating "within normal limits". My doc told me because of my particular thyroid disorder (Hashimoto's) she wants me between .2-2:0. Since I have been under her care I have felt better than I have in years. I literally felt like I was dying before her. Let me also add that synthetic thyroid replacement was what I was on until she switched me to bioidentical. I feel like a different person. Now it may be just me, I don't know, but all my ailments and symptoms resolved when I switched. A lot of doctors say bio identical thyroid replacement is antiquated and outdated, but I will never go back to synthetic again.

  • sarah63412
    sarah63412

    Posted

    The doctor wouldn't test me again as I was only tested in November and was borderline

    She said after pregnancy periods can be irregular for up to a year but it's frustrating as that's not/ never has been regular for me up until the last couple if months and my daughters almost 10 months

    I'm waking feeling sick, utterly exhausted napping when my daughter naps

    My nails are brittle my hairs coming out and like straw

    My eyes are dry and itchy

    I'm not having periods

    I've miscarried in the past

    I'm always extremely cold

    I don't understand how I was diagnosed at 8/10 years old to be told in my 20s it was a misdiagnosis

    I had been taking levothyroxine all that time

    This is so frustrating

    Without periods I'm not ovulating so no chance of second baby

    I'm pretty certain it's thyroid related

    • tereseV
      tereseV sarah63412

      Posted

      Also take into consideration that som edoctors don't consider a patient to be hypothyroid until their TSH goes higher than 10.0.

      Mine was at 7.97 and I felt like I was literally dying.

      You have to trust how you feel, not the blood work and keep going until you find a doctor who will help you.  You want one who will say this to you:  Okay, your lab results look good, but HOW DO YOU FEEL?  If they wont' help you, they are useless to you and move on.

      I was on synthetic when I was 7.97, btw and they said I was normal and I'll see you in a year.  Trust yourself.  do research.  If I give you too much info, big brother deletes my text rolleyes

  • Scazzoh
    Scazzoh sarah63412

    Posted

    Where you feeling OK on the levothyroxine between the ages of 8 and your early twenties? Who was the doctor who told you it was a misdiagnosis? He or she needs to be challenged. Write to him or her asking these questions and informing them of your symptoms. Find a doctor who will treat you for your under active thyroid and not by blood results alone. 
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.