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Please help

Posted , 4 users are following.

kayla_85371
kayla_85371

Hi my name is Kayla my best friend has chiari he feels alone and we need help and support from someone who has chiari to start communicating with a support group 

0 likes, 4 replies

4 Replies

  • ems74
    ems74 kayla_85371

    Posted

    As well as here there are a number of support groups on Facebook. They can be abit scary at first but you learn to ignore some of the horror stories. I only found out I had chiari in September so it’s still all new to me too 
    • j031017
      j031017 ems74

      Posted

      Hi, I was only diagnosed in October and just wondered if you minded sharing your symptoms?
  • b2wc97455
    b2wc97455 kayla_85371

    Posted

    Dear Kayla,

    You are caring about your friend perhaps ask her to join this group ...I search any website, I personally this one is the best...anyway, let your friend know its not doom and gloom, I am chiarian successful patient, I used to suffer terribly and effected me terribly I ended up house bound for over 2 years, I detested surgery, I wished I had done the soonest - Iwas suffering badly from head to toe..just unable to describe how horrible it was, but the soonest i woke up from the surgery - i am fine all the symptom gone, a part of  ache and pain of surgery..2 months healing is again likehell, but here I am over a year..I have my Quality of life back but I have to be careful though what I am doing - I am not doing lots of straining stuff..take it easy..here you go..

  • j031017
    j031017 kayla_85371

    Posted

    I would def encourage your friend to join, I'm new to this diagnosis too and have found it so helpful. No one on the site is a medical professional but they have what the experts don't - experience of how it is to live with chiari and advice and tips on how to manage the condition in any way possible

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