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I'm 20, I had open heart surgery 4 months ago as I had a large ASD 4cm x 5cm and they rebuilt my septum with part of my pericardium.
Everything went so well, until 4 weeks ago, when I got rushed into hospital for severe pain in my shoulders, shallow breathing, sats between 89 - 91 and a pulse of 139 with a high temp. The pain was so intense that it made me vomit, I couldn't sit up, stand or lay back down without passing out.
They done a full blood count, and two large bottles of blood (can't remember the name of the blood test) an MRI and an echo cardiogram.
They found that I had an infection somewhere, and was my risk of a blood clot came back positive. They said this could have been because of the infection.
I was treated with anti inflamatories and IV antibiotics aswell as high doses of clexane injections. 3 days later I was fine and was discharged.
On Thursday this week. I woke shaking, freezing cold, I went to get up, the exact pain was back again. My temp was high, so I took anti inflamatories again. But by Friday morning the pain was so bad yet again I was screaming in pain unable to move. Again, took to hospital by ambulance. Tests came back that there was no infection this time. Yet the pain was even more severe than before even morphine didnt help it just knocked me out. They sent me home with tramadol and a course of anti biotics. 2 days later the pain is no better. I can breathe this time, my temp is fine, sats 96/97 and pulse 113. But the pain is unreal. Again tramadol not working. I have a pain under my breasts and in my scar, aswell as in my left shoulder that hurts constantly and when I move takes my breathe away.
Doctors are saying pericarditis, as if its nothing. But all I read is horror stories.
Please tell me they can treat this. There must be a medication that will take the pain away as it is so bad I've wished I was dead and even asked doctors to just put me to sleep so I don't have to suffer this pain any more. Someone please help. The doctors aren't 100% sure on the pericarditis, they don't know how to treat me so they pretty much just shunt me out the way. What do I do? I'm at my wits end, something MUST be able to take this pain away. Please help!
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