Please help don't know what to do any more

Posted , 9 users are following.

Hi all

I really hope you can help me please I'm at my wits end I've been very ill for months now with all the following symptoms

. Distended stomach

. Lost stone and half of weight in 3 months

. Can't eat food and haven't eaten properly in about three months

. Severe pain in lower right abdomen

.bad cramps

.diarrea every time I eat

. Mucus

. Cracking and painful elbows

. Pain during intercourse

Been back and fourth to hospital stool sample calprotectin 175 but have had colonoscopy endoscopy and MRI done all negative. Told gynaecologically I'm fine.

Drs have discharged me saying I have irritable bowel syndrome and no signs of crohns been admitted 4 times and was just in for 9 days. I'm just not sure I'm concerned I'm so unwell can hardly walk in bed most of the time haven't been able to work for months hospital didn't help me and just sent me away with paracetamol which doesn't help and buscopan.

Has anyone else had this experience please I'm just worried could I have crohns and they are missing it I don't know what else to do a lady I met in hospital suggested I try to get referred to St marks hospital which is a specialist bowel hospital but how easy that will be I don't know. I'm just struggling to get by and need to get to work but don't know what to do anymore it's bringing me down ??

Thanks for listening any tips or advice would be really appreciated xxx

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  • Posted

    I am so sorry, I have had Crohn's for 2 years they started me on Humira it seemed to help. Then 2 months ago I egd colonoscopy and I had horrible lymphocytes in there. They diagnosed me with lupus. I have had the same symptoms I can eat liquids slolids make me sick. I also have days when everything goes right through me and I spend a couple of days in the bathroom.

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