PLEASE help, extreme sinus problems!

Posted , 7 users are following.

I am 19 years old with a history of extreme pollen, mold and dust allergies. I have been sick often growing up and in the past two years have an extremely difficult time for me. I'm experiencing some painful headaches, not frequently but that require me to turn all the lights off and sleep it off. Every single week or every other week I feel disoriented, like I'm dreaming, light headed, weak and miserable, and facial pain. The only time I feel better oddly is at night. This summer my symptoms got so extreme I came very close to passing out over five times. On my fitbit, I monitor my heart rate which is extremely fast, sometimes going up from 80 to 130 from just standing up. I am in a constant panic that I will pass out. I'm pale and haven't been myself in such a long time. Sometimes when I press on my face I'll feel mucous move but I'm not able to move it every time. I've been to an EMT and he told me that I have a severely deviated septum and that I need surgery, but upon research my mother discovered that sinus infections get worse after surgery as opposed to better so we took that option off the table. To make matters more strange, I have no congestion visibly that comes out of my nose, I've had a little blood the past couple days when I blow my nose but that normally doesn't happen. My mother has every exact symptom I'm experiencing. We've also been to my family doctor who thought I had POTS but that didn't match my full description. I am begging for an answer, I feel completely helpless. I have been placed on antibiotics but they did nothing. I use a saline nasal spray to try and moisturize my sinuses and a heat compress but can't find anything to completely alleviate my symptoms. I have been to the hospital three times for how sick I am feeling and have a high pain tolerance. Is it possible I have a blockage problem but not chronic sinusitis? If so how I manage? If someone could give me a possible explanation or advice I would be so so appreciative. 

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12 Replies

  • Posted

    Well if u went to the ENT he/she should have be able to tell if u have a blockage. But u have similar symptom has many people on this site. I to have not found any thing that has given me any long turn relief 
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    • Posted

      it's just so frustrating, i know people have far worse problems than this but I'm surprised there doesn't seem to be much research in the problems this group of people are experiencing. 

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    • Posted

      Yes Kelly that is the problem the medical field Is behind the eight ball on this because this type of ailment differs from person to person. The medical field is use to treating everyone the same. With this  ailment what may work for u does not work for others.  I also agree that there r worse problems out there, but unless u go through this type of ailment  people have no idea how debilitating it can be that includes doctors 
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    • Posted

      My friends and family dismiss my problems occasionally because they don't know how awful it is, feeling bad is the "norm", praying for more research to be done and relief for all of us. 

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    • Posted

      Been there done that, it is just ignorance on their part. The problem I have is not knowing how I am going to feel from day to day. So I don’t like making plans to far in advance which can frustrate some. 
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  • Posted

    i'm experiencing the same exact symptoms, especially the brain fog and light headedness, it's gone to the point where i'm not able to think at all! really hope we can all get rid of this! sad it sucks 

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    • Posted

      as a college student in a heath science field, every day is a struggle. I'm required to maintain a 3.5 which i have been able to maintain but it is so hard for me to achieve while feeling like this. i hope we all will get some relief as the cold approaches

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  • Posted

    Kelly,

    I had similar symptoms. I had two surgeries and they helped a lot. In my case the purpose of the surgeries was to enlarge my nasal passages so that all the crap in there could drain out. The first surgery removed polyps and might also have opened things up a bit (I don't exactly remember); the second surgery went really far up my sinuses, I think up to the brow area, and removed some of the bone there in order make the sinus passage bigger, which was great; there was nothing I wanted more than to get all the mucous that was trapped in there OUT! I still sneeze and get stuffy off and on, and my eustachian tubes still get congested, plugging my ears - but it's nowhere near as bad as it was before the surgeries. I can actually blow my nose and have stuff come out now, as opposed to just pushing it into my eustachian tubes.

    I'd say it's a mistake to take the surgery option off the table; it could really help you. You should at least meet with your doctor or a surgeon to find out more about what the surgery would entail, and consider it.

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    • Posted

      Thank you so much for your comment, Kevin. What my mother and I worry about surgery is because it seems when one sinus surgery is done, multiple surgeries are required. I'm also concerned altering my nose physically, as I heard that the nose will look different after surgery. If you could please give me any more details about your surgery, the recovery time and experience in general I'd really appreciate it. Are you planning on any more surgeries for your sinuses in the future? Thanks so much. 

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    • Posted

      I heard the same about surgery I know people who r on their third surgery and when dealing with areas so close to my brain it scares me. One of my ENT who continued to suggest surgery could not even give me a 50/50 success rate. I do not have any obstruction within my nose.but the plan was to shave down areas of my sinuses/nose  particularly the turbinates so the mucous could drain easier 
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  • Posted

    Kelly,

    I thought perhaps one important thing for you to ascertain first is if there are indeed infection in your sinuses. A thorough CT scan can help you ascertain that quickly. That infection can cause much head issue. I saw 2 ENTs and both missed diagnosing me with infected sinuses. I insisted with thesecond ENT that I get a CT scan. That’s when they found out... do get a thorough 3D scan.

    A deviated septum should not cause all the issue unless it caused blockages within your nose, which in turned lead to your sinuses being infected due to inability to drain.  

    If the sinuses are infected, then you need to work with the doctor on how to drain the sinus. Sometimes the only way to drain it is surgery. 

    But before you get there, you gotta know if your sinuses are really infected. Get that 3D CT scan done. 

    Cheers

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  • Posted

    Hi kelly

    I believe I can save you from a lifetime of suffering, as I have “been there and done that”.  I suffered chronic rhinitis-sinusitis until I turned 65, and discovered Evening Primrose Oil.

    I was treated by many specialists, had two nose operations, and tested thoroughly every known treatment for this problem, but it persisted and caused untold suffering, until I found a miracle cure.

    Evening Primrose Oil works by desensitising the nerves of the body so they do not react to normal irritants. It is not a drug, so it does not have adverse side affects, or affect mental ability.

    I works in about 4 hours and it is effective for a further 24 hours, so one 1000mg capsule daily is usually sufficient. It works by preventing the problem, rather than trying

    to overcome a problem already created.

    Try this simple cure and see if it is an answer to your problem.

    Kind regards, Ray.

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