PLEASE HELP !HIGH PROLACTIN I NEED ANSWERS PLEASE!!!

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About a year ago I had one abnormal period. I had two periods in one month so I went to my OBGYN without any exam she sent me to a endocrinologist. They ran bloodwork said that my prolactin level was 28 so I went back to my family doctor he wanted me to do an MRI but I am so anti medication and anti procedures but I still attempted to do the MRI but after being in it for only 7 minutes I freaked out. I wish I could do them but I can't. my doctor decided to monitor my prolactin levels 3 months later he checked them again and they were normal my prolactin levels to drop to a12 3 months later he checked it again it was 39 a few months later he check them my prolactin level again had dropped it was 15 it stayed low for a little while next test it was 39 again he encouraged need to get a MRI I failed at that again. We checked it again and it had dropped and now the last time that it was Check is elevated to a 42 I have not had any breast tenderness I have not had any ministerial issued I have not had any headaches I have not had any real symptoms other than feeling a little dizzy here in there and also my vision seems a little off but only on occasions. I ask my doctor to check on my vitamin levels he said all my vitamins were perfect. I've had my thyroid checked, my cortisol check everything in my blood work is perfect. Except these damn prolactin levels going up and down I don't have the hump that everyone talks about I do not have any idea what is going on with me someone please help me there's no way I can do and MRI I have tried with medication without medication I've tried 3x I just can't make myself lay there. I am allergic to anesthesia so putting me under anesthesia is out of the question which means I probably can't have the surgery what do I do does this sound like a pituitary tumor I mean they don't just come and go right? Thank you so much I hope someone replies

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  • Posted

    Hi Dee

    As far as I know, in the little that I have experienced you have to confirm pituitary tumours by CT or the more detailed mri scan. There's no getting around it. Is there a herbal med that you could take to make you drowsy or hynotherapy?

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  • Posted

    i agree with the other posters.

    if you want to find out whether or not there is a pituitary tumour then you will have to have the MRI. yes the noise is loud and it's not the most pleasant of experiences. but it's up to you. 

     

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  • Posted

    Hi Dee

    Sorry to read of your situation. My 8 year old daughter was diagnosed at 19 months with gigantism and extremely high readings of prolactin and after a MRI under anesthic ( GA )  they noticed macroadenoma on her pituitary gland. Then cabergoline was given unsuccessfully so at almost 3 years of age she had her pit- gland removed. Every 6 months she still has to have MRI under GA . You need to find strength to get through the MRI  or ask your doctor to have it under GA 

    All the best 

    Sonya 

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    • Posted

      Awwe my heart breaks for your baby . thats so sad. I don't think it much matters because I refused to do at MRI. Look tumors don't come and go if I had a tumor on my pituitary gland I wouldn't have normal readings every other time. People don't understand this serious dangers but our results from MRI and catscans they are extremely dangerous and sometimes cause cancer to me even if I had the surgery 80% of the time they come back. And the medication is just as dangerous I posted this to find out if anyone had prolactin levels that raised and dropped constantly. It just don't make sense to me but I will keep your little girl in my prayers
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  • Posted

    Hi deehines43,

    Just wanted to validate your anxieties. In fact, I have just learned I have a benign 4 mm pituitary tumor via MRI. My Prolactin levels and TSH levels were all normal...and normal all my life. It was the fact that I found slight discharge on my bra (galactorrhea) after a failed IVF embryo transfer, did my new endocrinologist and fertility specialist question the existence of a tumour. Just recently were my prolactin levels one point higher but they reduced back to normal and I started menstrating normally.

    I have been struggling with infertility since in my 20s. I am 40 now. Not sure how long I had this tumor, but none of my previous fertility specialists asked for an MRI as my prolactin levels were normal and I menstruated regularly on a 28 day cycle.

    So to help alleviate your concerns from the multiple research articles I read... and recommendations of my endocrinologist....if one dose not seek fertility, and minimal symptoms u may not need to go through an MRI and take ergot derivative (medication) to either shrink the tumor or reduce prolactin levels to help with fertility.

    Hope that helps,

    Alex

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