Please help I'm convinced it's seizures

Posted , 3 users are following.

Please see post below on an epilepsy forum and this is exactly what I am going through. Please can someone help. Please. I have intense Deja vu which is going worse. I have had tests in the past and they have all come back clear but this link below is identical to my situation. I am scared stiff. 

In my early twenties I began experiencing strong deja vu a couple of times a week. Never happened me before then. Then it began to occur nearly every day. Along with a strong sense of fear and dread. It was so disablitating and ruined my day to day life as I was always waiting for the next one. It would typically last about 10 seconds. I attributed these to panic attacks or depression. I carried on having these episodes day in and day out for 2 years or more. My gp put me on anti depressants when I explained what was happening to me which didnt help. I didn't know any better because it felt similar to what a panic attack may feel like whenever I had one. Soon after I had my first grand mal seizure. Then another the following weekend. After an MRI and an EEG I was diagnosed with TLE. I was so frustrated that my GP was unable to pick up the fact that I was experiencing partial seizures!! I was on anti depressants for 3 years for no reason at all. Listen to your gut. I ho

0 likes, 10 replies

10 Replies

  • Posted

    I guess no one will help or advise me then 
  • Posted

    I am confused. Are you having seizures, or do you think you are having seizures?
    • Posted

      I think I am having them because i am getting the intense Deja vu and then the rising feeling through body then the tiredness and faint feeling which leaves me drained for a little while. 

      I am scared this leading to a major seizure 

    • Posted

      If a doctor has told you it is anxiety you should have faith and trust in your doctors and believe what they say.

      I say this because I too go through this same thing. When it all started 2 years ago I would get these intense deja vu feelings where I felt like I was having the exact conversation with the exact people in the exact location at that very moment. I would then feel very lightheaded and sometimes very nervous. i had to EKGs, and EEG, an MRI, and CTScan blood work on top of blood work done, an ultrasound on my gallbladder....literally I had thousands and thousands of dollars in doctors bills thinking I was having seizures. I was thinking this because A-the things I was reading online and B- My sister has epilepsy and I somehow convinced myself if she had it there was a chance I had it too because of genetics. 

      I tell you all of that to say this....NOBODY else in my family has seizures except for my sister, so as it may be predisposed it does not have to be. And for a week or two out of every month I have the same feeling as you and after 2 years I still have not had a seizure. I have accepted the fact that I have Extremely high anxiety, panic attacks, and I am OCD and when I start feeling like that, instead of dwelling on it and letting my thoughts get away from me. I constantly tell myself this is just my anxiety this is just my anxiety it will pass. The faster you learn to not focus on it the faster they will go away. Go for a walk, breathe, meditate, be active....RELAX. It will all be okay.

    • Posted

      Hi Smalltowngirl, 

      Thank you very much your post does a little bit of worry on me. I think its the fact it just happens at random these deja vu feelings and I am quite relaxed at the time and I dont know when it is going to happen. Also why have I had these feelings on and off for the last few years. Not related to the deja vu but I also have occasionally this flickering zig zag image which blocks my vision which can last 15-20 mins and then followed by a migraine feeling. I am scared of epilepsy so much should I be worried these deja vu feelings will progress into a complex partial followed by secondary generalised seizures?

  • Posted

    I think we all worry a little bit....That is what anxiety is irrational worry. The less attention you show it and the less you fear it. The more it will be easier to handle.
    • Posted

      I understand this Smalltown Girl but how come it says on all epilepsy websites that Deja Vu is one of the key symptoms before  seizure that is why I cant see it being anything else. I am terrified of seizures and to be told I have this would finish me off completely. 

      I wish deja vu can be caused by anxiety and nothing else. 

    • Posted

      A lot of different things share symptoms..... Cancer, anxiety, MS, epilepsy, Panic attacks, PTSD, brain tumors...... All share some of the same symptoms.....that does not mean you have it, it just means you have a symptom of it...A symptom of it...not all symptoms of seizures.....TRUST YOUR DOCTORS. RELAX honey! It will be okay.

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