Please help I've had clostridium difficile colitis for years untreated.

Hello My name is amanda! I am 26 and I had my gullbladder removed in the fall of 2014. Because the surgery was an emergency i wasn't in an out within a day like a normal procedure. I Stayed in the hospital for a week. i believe that is where i contracted the C diff infection. since i was having watery stools 8-10 times a day i assumed it was from having my gullbladder removed my surgeon told me that watery stools would happen until my body was used to and addapted to my gullbladder being gone. For years i just assumed this was my new normal. The terrible stomach cramping, Bloating, Bloody stools, Watery stools all day every day, fissures, hemorrhoids and the vomiting were just some of the things i experienced on a daily bases. Since I was having other medical problems around the same time that all of this was going on I just put all of my stomach symptoms on the back burner and just started "accepting" these as the new normal for me. 4 years later and still having the symptoms after I got the other medical things taken care of. I decided it was finally time since the symptoms were as worse as ever to figure out what was going on. I was put on different medications and told I had IBS because of my surgery for another year I tried different medications that in return just left me constipated and the cramping even worse. Yes it took care of the watery stools but the constipation was so bad that I stopped the meds and delt with the diarrhea ( since it felt better to let it out then hold it in and be constipated) once I told My primary care doctor that I had enough he sent me to a GI specialist. They did a Stool sample and that night the on call doctor from the lab told me I had the C diff infection. 4 years of the same symptoms worsening. I finally had answers!! My GI specialist put me on a 10 day round of Vancomycin 125 mg 4 times a day. I was tested again after I finished the round of antibiotics. And yet again tested positive for the C diff infection. My Doctor told me she was going to put me on another round of the same antibiotics but for 3 months this time. She said if this round doesn't work she wants me to get Fecal microbiota transplant. I am hoping this round will work though. I've searched the internet for anyone that has gone through c diff for this long. The only stories I have seen are of people that took antibiotics and got C diff from that and have only had symptoms for 4-6 weeks. I'm looking for anyone that has had it for years I'm nervous what my colonoscopy will show since I've had it for so many years. I'm hoping there is not to much damage to my insides. I'm open to any and all suggestions a long with personal experiences with C diff thank you in advance for all of your help!

0 likes, 3 replies