Please help!!! Im freaking out!!!

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Hello! I'm a 16 year old female who's having odd heart issues. I should first tell you that I was diagnosed with SVT (Supraventricular tachycardia) when I was 13 but just recently had and ablation about 6 months ago. My blood pressure is 134/87 and my pulse rate tends to stay really high. Okay, well about 2 weeks ago I started having an abnormally fast pulse rate and I was short of breath all the time. It lasted for about 4 days before I decided to go to the ER... They did blood work, an electrocardiogram, took an X-ray and monitored me for 6 hours. After those 6 hours were done they told me i was fine and they could find nothing wrong with the tests. Both the doctors and my parents told me it was just stress and anxiety. Its been about 6 days and I still feel like crap but now its weird. My pulse rate isn't bothering me, its now how hard its beating. My head feels crazy (it feels like pressure and I'm dizzy), my chest is tight, I'm still really short of breath, I feel stiff and tight, my left arm keeps having sharp pains at the top (not sure if its related), palpations and I'm having another chest feeling that I can't really describe other than tired and worn out. Its very odd but its been doing this for days now and I can't think of what it could be... None of my limbs are swollen, my blood pressure isn't drastically high and they said I was fine. I'm terrified that something is going to happen in my sleep or my hearts just gonna give out.

Can someone please help me!!! I have no idea what's going on and the cardiologist won't see me for another month. I don't want to die

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  • Posted

    Just breath, try and relax. Try feeling reassured that the doctors did all those tests and monitored your heart and found nothing wrong. That’s great news ! Did they do an ekg if so did it show anything? Try some meditation and yoga for your anxiety you may find your pulse will decrease when your anxiety decreases. 
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    • Posted

      Yes they did an EKG and it came back normal. They told me that everything looked fine and to relax but its still going on. I feel so tires and drained and I'm scared of having heart failure. Do you know what could be going on?

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  • Posted

    If you lie down and take your pulse, then stand up and take your pulse, how do they compare?

    Have you had anything to do with beta blockers?

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    • Posted

      My BPM does shoot up when I stand up or do anything at this point. They also tried to put me on propranolol but I couldn't take it because it was making me feel weird as I was falling asleep.

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    • Posted

      A similar beta blocker, Bisoprolol has given me Autonomic Instability or Dysautonomia, beta blockers disrupt the Autonomic Nervous System which is all the automatic functions of your body.

      Look up POTs Dysautonomia, I have copied and pasted this for you, its a possibility.

      Postural orthostatic tachycardia syndrome (POTS) is a condition in which the heart rate increases to an abnormally high level when a person stands up. People who have POTS often experience symptoms when they are upright. The most typical symptoms are lightheadedness and palpitations, which can vary in severity from relatively mild to incapacitating.

      In addition to the rapid heart rate, sometimes they can also have a drop in their blood pressure when standing. Up to 40% of people diagnosed with POTS eventually will have at least one episode of syncope (passing out).

      POTS is a disorder of young people. Most who have this condition are between 14 and 45 years of age, and typically they are otherwise quite healthy. Women are four to five times more likely to develop POTS than men. A propensity for POTS appears to be present in some families.

      What Causes POTS?

      Experts disagree on the causes of POTS. Some have attributed it to deconditioning (such as after bedrest) or dehydration, but these conditions are temporary and go away relatively quickly, while POTS tends to persist.

      More likely, POTS is a form of dysautonomia, a family of conditions caused by an imbalance in the autonomic nervous system — the part of the nervous system that manages the "unconscious" bodily functions, such as digestion, breathing and heart rate.

      When the autonomic nervous system is out of balance, a whole host of symptoms can result, involving the cardiovascular system, breathing, the digestive system, the muscles and the skin.

      There are several syndromes thought to be due to dysautonomia, including fibromyalgia, chronic fatigue syndrome, irritable bowel syndrome and inappropriate sinus tachycardia.

      However, people with dysautonomia often experience symptoms that overlap among these various syndromes.

      What actually causes POTS — or, for that matter, any of the dysautonomias — is unknown. However, as is typical for the dysautonomias, the onset of POTS is often quite sudden, and often follows an acute infectious illness (such as a bad case of influenza); an episode of trauma (such as a broken bone, childbirth or surgery); exposure to toxins (such as Agent Orange); or severe emotional stress (such as battle fatigue or post traumatic stress wink.

      Studies in people who have POTS suggest that they also may have altered nervous system function that especially affects the lower extremities, and may have a chronically lower blood volume than normal.

      Symptoms with POTS

      People who have POTS can have a range of symptoms whenever they are upright; the symptoms vary quite a bit in severity from person to person. In many POTS sufferers, symptoms are relatively mild. In others, symptoms are virtually incapacitating.

      The most common symptoms are palpitations, lightheadedness, dizziness, blurred vision, weakness, tremulousness and feelings of anxiety. Less often, syncope can occur.

      POTS sometimes overlaps with other dysautonomia syndromes, so people with POTS may also experience additional symptoms such as abdominal cramps, bloating, diarrhea, constipation, aches and pains and extreme fatigue.

      Successfully treating the fast heart rate that occurs when standing does not guarantee that these "other" symptoms (if any) will also go away.

      How Is POTS Diagnosed?

      Doctors should be able to diagnose POTS by taking a careful medical history and performing a thorough physical examination. The key to the diagnosis is demonstrating that the heart rate increases abnormally in the upright posture. This means that if you are having symptoms suggestive of POTS, your doctor should take your blood pressure at least twice — once while you are lying down and once while you are standing.

      Normally, when a person stands up, the heart rate increases by 10 beats per minute or less.

      With POTS, the increase is often far greater -- usually 30 beats per minute or more. Sometimes this abnormal increase in heart rate only occurs after the patient is standing for several minutes.

      For this reason, if POTS is suspected a tilt-table test may be helpful in making the diagnosis.

      If an abnormal increase in heart rate while standing is found, your doctor ought to look for other potential causes, such as dehydration, deconditioning from prolonged bedrest, diabetic neuropathy or various drugs (especially diuretics or blood pressure medication). If none of these other causes is present, then the diagnosis of POTS can be made with some confidence.

      The fact that POTS produces this objective, reproducible finding (that is, the increase in heart rate when standing), gives people who have POTS a decided advantage over people who have most other forms of dysautonomia, in whom their condition often produces few (if any) objective findings. Many unfortunate people with dysautonomia are told by more than one doctor that they merely have "anxiety." For doctors to miss the diagnosis altogether should be rare in people who have POTS.

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    • Posted

      Oh thank you so much! I really, appreciate it!!! I was actually able to get a cardiologist appointment for this Monday and will most definitely mention this to my cardiologist... My only worries are having something like HCM because it usually doesn't show up in any tests other then echocardiogram (which is the only test I haven't gotten) but again thank you so much, this was a big help!

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