please help me !!!

Posted , 11 users are following.

I'm a girl in 22 years old. I had 5 plonidal sinus surgeries and now it's come around. I just want to now that where is the cure?? where is the best hospital and doctor? I can go everywhere for treatment all around the world so is there anyone who help me ?? I'm begging you ! 

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  • Posted

    If you can get to my post on This read myn, mums just been healed 7 weeks and broke open down the bottom near my bum.. Can't believe it I honestly thought I was going to be going back to work next month, I've been off since January the 7th

    All you hear with these are horror story's and I honestly though my story was Guna give people hope..

    I just got a infection and it decided it like cut a bit, ain't been getting it packed cos it's shallow but they just keep saying to me the area it is in it's hard to heal with it been hot and sweaty .. Nightmare man.. Chin up and hope u get the news u looking for off some lucky person

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  • Posted

    I had a lot of problems with these. I was operated twice by the same surgeon and he didn't do anything right. For the third one I went to a hospital called

    Ashford Presbyterian Hospital in Condado, Puerto Rico. One of the three amazing colorrectal surgeons operated on me and my wound closed. Now I get to live normally.

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  • Posted

    Have you been tested for something like Crohns Disease? It can cause symptoms such as this, and I am struggling to get my hospital to test me for it although it is widely available. I had my 16th surgery less than two weeks ago and it has already broke down again, so more surgery this week by the looks of it. I am 33 and it has been open or infected constantly for the last 8 years so they can ruin lives without anyone else knowing how bad they can become..
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    • Posted

      Hello!

      I havent bien diagnosed with this. Thanks for telling me this inforamation. I hope it heals and stops Causing you pain. Get tested for crohns disease and I would reccomend you chance your doctor. Mine saved my life.

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    • Posted

      Myn keeps opening too mate

      I sort of know how u feel but uve had it so long God knows how u feel

      I got first op in jan this year, stitches, they don't won't so got cut back open in March to leave open and packed it closed about 7 weeks ago then opened slightly again 3 weeks ago and won't close and been infected 3 weeks

      Devastated mate and starting to feel depressed now

      9th month on the sick.. There doesn't seem to be any one who knows how to heal these does they..

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  • Posted

    It happens with me also as when last time I had surgery then my GP said do not worry it is now okay but latter on after one week it starts again and my GP was still saying do not worry and now as 4 years I am having this issue bigger than before as a new hole opens with blood coming majority of times.

    As now as I am reading about it since last 9 years I think there is no cure available as wherever I hear people are saying always surgery, sometime people got 15 to 20 times surgery and they are not yet get rid out of it.

    I am really very afraid and depressed sometimes I am worried a lot.

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  • Posted

    My son has been suffering with this since he was 18 & is now 23. Last op was really good and fingers crossed. Mr Emin Carapeti of London Bridge hospital. Had to pay privately but best money we ever spent . Good luck it's truly awful and so difficult to live with
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    • Posted

      What differently have they done in this surgery to the last one Gill

      Just I've been cut and stitched and cut and packed off district nurses and there now trying to tell me reason I can't shake of this infection what I've had for 5 weeks is cos there's another one under me scar/wound

      There a bloody joke lol

      I feel so sorry for myself and your son and everyone else with this problem

      Our nhs is a joke Isn't it

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    • Posted

      I think the prob is that it's a really specialised prob and the nhs are not expert enough. The first op they did they left my son's wound open to 5cms deep. It was 6cm wide and 10 cm long. It never completely healed though and infection kept building up. This went on with loads of antibiotics for abt 4 years and then last Nov he had a different op which involved making a different cut and moving the opening to higher up. But they stitched it up and the infection never went but got so much worse. The latest op, the surgeon removed same amount as first op, but said it would only heal if the hole was stitched up to 1cm deep but still long and wide . Otherwise too much opportunity to get re infected. Surgeon said it has to be cleaned and scrubbed out with cotton buds each day. Then packed with silver based dressing and also use Metronidazole cream. So I've been doing that for him. It's really different this time and we've got everything crossed. The surgeon said he's never not been able to cure one, and altho my son's is complex and severe he's confident it will work. The difference in 5wks is incredible.
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    • Posted

      Well tell your son I hope to god it works cos I've had a year of this and I'm ruined mental wise lol

      Been a nightmare using loo etc am sure he knows.. I hope it works

      Fingers crossed for you's

      Let me know when it's fully healed please if u don't mind smile

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    • Posted

      Certainly will. My son's been very down as well, it ruins your life. I started writing on this to give us both some hope.its definitely helped. And yes going to the loo has been an absolute nightmare. Good luck
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    • Posted

      I have just had the reply from my hospitals investigation into my complaint as I want to know why it can cause this much trouble and why they can't give me an answer to why mine doesnt heal.  The answer was laughable as they said " It is a difficult condition to treat. "  What a load of rubbish.

      I had another operation in August and they stitched it up without listening to me that it would break down.  It broke down within 2 weeks and now I am having it packed daily, and I went to my GP this week and it is on my notes that when it is healed they want to lay it open again!

      I had it first in 1999, again in 2005 and since 2007 it has been open and had a further 16 operations on.  Im not sure why the NHS can't help me more than they have as nobody really understands the impact it can have unless they have had it with probems. 

      Good luck to everyone. 

       

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    • Posted

      Shocking mate isn't it

      Myns practicly closed and they saying the reason my won't fully and I still have infection is cos there is another one underneath.. I was cut 4 cms deep so I duno how they couldn't av got it all

      Y do they want to lay u back open once healed ?

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    • Posted

      The surgeon I've been talking about has cured people that have had 20 + ops. It's worth a try but he only works privately. It's been money well spent so far. He's an expert and has so much experience
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    • Posted

      I haven't got a clue.  When it comes to my treatment I seem to be the last person to know. I had ALL the skin removed in the area, right down to the muscle and that didnt help either, not sure how deep it was but there wasn't any skin as the dressing got stuck to the muscle.
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    • Posted

      I understand it's not an option for everyone. We used credit but my son said it's unfair, what about those who can't do that. If u Google the surgeon then he does have nhs colleagues. Maybe worth a begging email?!
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    • Posted

      There suppose to be wound specialist aren't they so am hoping they know how to fix my hole in wound.. 95% of the wound is closed apart from a little hole..

      Shame they don't have a magic wand for all of us

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    • Posted

      I had surgery for the drainage of a perianal abscess. It was a large abscess which was extremely painful. I was admitted to hospital as an emergency and had surgery to drain the abscess. The wound was left open to heal and I have been attending the hospital on a daily basis to have the wound packed and the dressing changed.

      After 4 weeks  the nurse packing my wound told me although it is almost healed on the outside, there is still a 2cm depth inside the wound and that the outside is healing faster than the inside. She said if the wound closes too early I will be left with a pocket which could cause the abscess to re-occur.

      She called a consultant who examined my wound (ouch) and he said I have to come in for further surgery under anaesthetic to open the wound up as the opening was too small, so packing can be inserted and also to examine the wound to check for 'tracking'. 

      That was on Friday and I was booked in on the Monday, I had the procedure done and the original incision was like a cross shape measuring 1.2cm by 2cm, it is now 2cm by 3cm! Hurts more than last time... More packing going in and the depth is now 1cm more! Bled quite heavy afterwards!

      Is this the usual incision shape for drainage it's like a ''+'' shape incision.

      The are using aquacel to pack it, is it ok to leave the packing in overnight - if i do it has a funny smell to it on removel. Urgh! is this ok as when I had the surgery on Monday they used alginate rope to pack it.

      SOre at mo - 

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    • Posted

      I had surgery for the drainage of a perianal abscess. It was a large abscess which was extremely painful. I was admitted to hospital as an emergency and had surgery to drain the abscess. The wound was left open to heal and I have been attending the hospital on a daily basis to have the wound packed and the dressing changed.

      After 4 weeks  the nurse packing my wound told me although it is almost healed on the outside, there is still a 2cm depth inside the wound and that the outside is healing faster than the inside. She said if the wound closes too early I will be left with a pocket which could cause the abscess to re-occur.

      She called a consultant who examined my wound (ouch) and he said I have to come in for further surgery under anaesthetic to open the wound up as the opening was too small, so packing can be inserted and also to examine the wound to check for 'tracking'. 

      That was on Friday and I was booked in on the Monday, I had the procedure done and the original incision was like a cross shape measuring 1.2cm by 2cm, it is now 2cm by 3cm! Hurts more than last time... More packing going in and the depth is now 1cm more! Bled quite heavy afterwards!

      Is this the usual incision shape for drainage it's like a ''+'' shape incision.

      The are using aquacel to pack it, is it ok to leave the packing in overnight - if i do it has a funny smell to it on removel. Urgh! is this ok as when I had the surgery on Monday they used alginate rope to pack it.

      SOre at mo - 

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    • Posted

      Myn is a line cut from bottom of back going down bum area to about a inch away from bottom

      Myn isn't a +

      When I first got cut I was 12cm long 3cm wide 4cm deep lol

      Butchered I was

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