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Please help me answer my questions.. I am sick and tired..

Posted , 5 users are following.

Kediich
Kediich

I am Chetan. Male, 29 yrs. Based in UK, Manchester.

Back in December 2012 I started getting loose motions thinking the cause might be from some bad food but in a weeks time I saw Blood in my stool. The bleeding didn't stop for weeks so had to consult my local doctor and referred me to a specialist. After Running with doctors for 2 months untreated, in January 2013 they did a sigmoidoscopy and took some biopsies to confirm Ulcerative colities in my rectum and sigmoid region for now. There is not even a single day where I can't stop thinking about it as it is uncurable

I take Pentasa tablets 4 gms each day. 80% of the time regular.. It gave me slight relief for a month I guess but have been seeing Blood and watery stool since my first symptoms. My Bowel Moments was 2 to 3 times a day but from past few days it has increased to 5 to 6 times a day. Doctors say this is flare up period.. My motion is very watery and bloody. Sometimes blood mixed in stool. I have also started taking Prednisolone foam enema through my back passage for 4 weeks thinking it will do good but didn't help. Stupid online stories have made me more stressed as it talks about colon cancers which is rubbish for my age I think

I get scared to eat anything now. I am trying to maintain my weight but I am just 52 Kgs as of now and think I was 58 to 60 in Dec last year. I get body pain now & then and also had back pain 2 months ago for a week. I feel really week and tend to relate everything to my disease. Is this because of my loose motion? My Vitamin D and iron levels were also low recently so I am also taking Vitamin D supplements for a week.How do I live my daily life as normal is my question? How can I stop thinking about it? How can I stop UC to go worse. Is my disease moderate, Mild or severe? What is the most common medicine people generally take?

Finally I am a vegetarian and don't eat any meat or fish which is a shame. I ovoid heavy spices. Many people say different things about diet. I am so confused about food.

2 likes, 19 replies

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  • Kediich
    Kediich

    Posted

    Hi all, i am back in the hospital again today. I was discharged last thursday with 6 MP and prednisolone steriods thinking it will work but i started getting severe back ache and tummy pain during the night from next day. It mainly increases during night. Not sure why? I was then given pain killers like co-codimol which gave me slight relief but i am now constipated since 4 days. My crp has gone up to 50. Not sure what's happening? They have asked me to stop 6 mp from today and said this might be a side effect of 6 mp. Any body has any idea is the constipation due to 6 mp. I am in iv steroids in the hospital. Please help
  • steph63308
    steph63308

    Posted

    Could be 6mp but also Codeine makes you bunged up, it slows down the bowel, it can be given to actually control your bowel. I had codeine phosphate on prescription for years just to reduce the amount of loo visits

    One extreme to other for you at the minute.

    Keep your chin up.

  • Kediich
    Kediich

    Posted

    Hi steph, thanks for your reply. Will my constipation stop? They gave me enamas but was not helpful that much. I am hepatitis b+ as well so the doctors said the medicines are limited for me. From your knowledge what other options would you consider. I have tried both azithiaprine and 6 mp as you know. I will try and say to the doctor abt any recommendations. Last thing i want is infleximab injections or surgery.
  • steph63308
    steph63308

    Posted

    It should return to normal but if you are taking codeine it might take a while, drink plenty of water.

    I am going through treatments the way you are, I have autoimmune hepatitis so they have to be careful with me too. I had infliximab, but wasn't great for me, their next treatment for me will be humira but I haven't started it yet. Although perdnisolone can be awful it does seem to get it under control, I started on 60mg daily, I'm not on it now though. To control UC I have had sulphasalazine, mezalazine, codeine, loperamide and infliximab, Im now only on azathioprine until the humira starts. There is a steroid rectal foam if the inflammation is in the lower end, that did help. I had most of my bowel removed due to cancer but I still have active UC in the small section I have left so I think I have had most options but this was over a course of 20 years, I understand you not wanting surgery but people who have had the worst ulcerated part cut away swear it was the best thing, I am only trying to avoid it as it would be a permanent colostomy for me, you may want to chat to people who have had a temp ileostomy, it might be worth considering.

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