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Please HELP me urinating every 15 mins/extremely depressed

Posted , 5 users are following.

SassyKJ
SassyKJ

I am 49 never had a UTI or any urinary issues ever.  A month ago I woke up and could not stop urinating.  Its to the point that I cant go to work or anywhere else for that matter.  It was like a light switch this did't happen gradually.  I have been to the Dr 4 times and a urlogist, something is wrong but nobody seems to want to listen or help fix the problem.  I was prescribed Myrbetriq which I have been on for 7 days with NO relief.  I have had cancer in 2012 (lymphoma) and chemo and that was a CAKE walk compared to this.  I am EXTREMELY depressed, afraid of losing my job.  Can something like this start overnight like this?  Only 1 urinalysis out of 4 grew a bacteria called enterococcus faecalis and I was treated with Amoxicillin then Cipro with no results.  I have left kidney flank pain and I truly feel like I have a UTI or Kidney infection but nobody will treat it as such since my urine never shows an infection (probably because I was on antibiodics??)  I am DESPERATE over this.  I cant imagine living like this for the rest of my life.

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  • brainy79043
    brainy79043 SassyKJ

    Posted

    Wish I had something more useful, but can assure you that you are in NO WAY alone.

    Still on the remedy search myself. About to try Interstim device. Nothing has worked so far, including Myrbetriq and everything else. Let's pray for each other!

    • SassyKJ
      SassyKJ Skylerdiapered

      Posted

      I have been praying and I hope there is a solution for this.  I wish there was more information out there for people like us suffering from this terrible thing.  I had a Dr. appt today 20 minutes away it took me an hour and a half to get there for the bathroom stops,  They did do a urinalysis and I DO have an infection.  (I have been telling my dr this for a month) but he keeps insisting I dont as my urinalysis(s) were not coming back with anything...only once but now twice so started on a new antibiotic but waiting for culture results to know if I am on the right medication.  Can incontinence start overnight?  Because mine just started one night and never stopped.
    • SassyKJ
      SassyKJ brainy79043

      Posted

      Did yours also start just overnight?  I mean I have never had urinary issues and I do have a UTI for a month now...the antibiotics havent been working and I am thinking or should I say PRAYING with the right antibiotics this will go away?  They just did another urinalysis that confirms I have a uti (this is the second one in my lifetime)  I just cant believe something like this would start overnight???
    • brainy79043
      brainy79043 SassyKJ

      Posted

      Hey Sassy.

      Mine started very gradually over 30 years ago; too gradual to be an issue until the last decade.

      Overnight for you - must have been alarming!

      Had my trial Interstim inserted about 9 hours ago. I was resigned to "Hope for the best, expect the worst'.

      It is way too early tfor a conclusion, but so far YIPPEE-KI-YO-KI-YAY!

      Would ordinarily have wet my pads and peed at least five times by now, but just one or two in 9 hours AND drinking lots of coffee which I often must avoid.

      The procedure was easy and pain-free. Along with Botox injections (which I can't take because my problem stems from being diabetic), this may very well be my miracle cure.

      Will go back in a week to make it permanent or, if the issue is not at least 50% improved, remove the device entirely.

      Please, please, please find a urologist, female if possible, that is on board with these procedures.

      Sending you my best thoughts!

       

    • SassyKJ
      SassyKJ brainy79043

      Posted

      What kind of device is this?  I am I suppose pre-diabetic.  I have changed my diet around and my sugar is really good except in the mornings.  OMG I will say a prayer that this works for you.  nobody should suffer with this.  It took me an hour and a half to see a urologist today that is 20 mins away due to six bathroom stops.  Keep me posted :-)
  • Skylerdiapered
    Skylerdiapered SassyKJ

    Posted

    Well sounds like you are going through hard times,I recommend you to go to a physical therapist in the place you live in and they will say you should do kegals exercises
    • brainy79043
      brainy79043 Skylerdiapered

      Posted

      Mine was created by the same company that makes my insulin pump, which helped me decide. This link says something about "not for diabetics" but none of my specialists cared. Doc thought Botox might not work as well on a nerve damaged by diabetes.

      I am excited to hear what you do!

      Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.

    • SassyKJ
      SassyKJ brainy79043

      Posted

      Good Morning :-)  How is ot working for you since yesterday?  Did you get a good sleep?  I SO miss sleeping.  Also, do you have any suggestions for the rawness that seems to occur from the diapers?  OMG I can barely sit.  I feel like nobody thinks this is a serious issue, unless this actually happens to you, I dont think anyone can truly understand.  I just want my life back!  Please let me know how you are doing with the device?  Wondering and hoping if your still having relief...wink
  • brainy79043
    brainy79043 SassyKJ

    Posted

    Good morning to you, Sassy. Recovery is perfect. Took me a while to fall asleep as well, but okay now.

    The device effects started decreasing later in the evening and Medtronic instructed me to turn up the stim rate. Apparently they started me at the lowest and want me to adjust it during this trial week. The minimum they are hoping to get is 50% improvement, although I want MUCH more.

    I'm confused about diaper rawness. They seem soft. Perhaps a different brand is worth a try. Inspire Womens Underwear and Depend FitFlex work okay. I've worn my undies under the diaper. If I wear an outfit that can't take the diaper, I just load up my own underwear with padding. 

     I believe a lot more of us understand this than we suspect.

    Always gotta experiment as much as possible to make our lives that much better.

    • SassyKJ
      SassyKJ brainy79043

      Posted

      I really hope this works for you and I cant wait to hear you tell me how much better your life is with this device.  It is appauling to me that we have to go through all these crazy tests and different medications before we can have a real solution to the problem.  I do Bookkeeping for a job and I sit for most of the day when I am not running every 5 mins to the bathroom.  I am sure I am going to lose my job because of this. I am raw from all the urinating and wiping.  I always feel dirty and I just cant seem to let go in the diapers.  I guess maybe at some point I will finally give in but so far I just cant seem to just let it go. I have a pretty bad UTI right now and have had it since this started just over a month ago. I am on Macrobid right now and I am PRAYING this will reverse this.  Please keep me posted on your progress I am SO hoping you get the desired results.  I am so thankful to have found this forum and to ave wonderful people like you to help get each other through this difficult time.  Have a wonderful day :-)
    • SassyKJ
      SassyKJ brainy79043

      Posted

      Good Morning Brainy!  Wondering how you are coming along?  I was switched from Myrbetriq to Xoycontinin and it is working SO much better.  Im seeing urologist Monday I would really love to find out what is causing this instead of medicating the issue...but at this point going less than 4 times an hour feels like heaven.
  • brainy79043
    brainy79043 SassyKJ

    Posted

    Hi Sassy.

    Really glad you're happy with the new med.

    I am extraordinarily even tempered, but Myrbetriq made me feel homicidal.

    The first half-day after stim insertion was 100%. Leaking and urgency got better, 

    then wavered

    Stil adjusting the trial rate and it's mostly improved, except the frequency is still a  higher than I want.

    Best of luck with Xoycontinin!

    I will be satisfied at this rate, but trying for better.

    • SassyKJ
      SassyKJ brainy79043

      Posted

      Good Morning Brainy....So the oxybutinin is helping a little...still going at least once an hour.  Yesterday they put the camera into my bladder and everything is fine.  They now recommend Botox injections in the bladder.  Have you tried this?  If so did you have any success?  Was it painful?  Very scared about having this done.  Also now that you have the Interstim how frequent do you need to go?
    • brainy79043
      brainy79043 SassyKJ

      Posted

      Happy to hear the Oxy is helping, Sassy.

      The InterStim has definitely improved things but still going more frequently than I'd like - going hourly, but sometimes several hours will pass. Love those moments!

      The permanent stim is in; surgery went well and I have the remote to adjust the rate and hope for even better results.

      Resigned to the fact that I may have to accept and live with a less-than perfect cure, but am grateful for all the help it's given me.

      Will also await newer technology to come along with something miraculous.

      For ALL of us!

       

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