Please Help! really fed up!!

adding to this i have had blood test for my iron levels. my results are lower end of normal! so i have been putting on medication for it! which i am starting to feel much better with! also i take woman wellness packs (vitamins etc for all that a woman needs each day).

Your symptoms sound like endometriosis to me and the only way to actually see it and diagnose it is through laparoscopy. Your symptoms sound kind of similar to mine, before my surgery three weeks ago and now I'm pain free. Here's my story and advice. It's long, with some back-story. But, please read it all, you may get some very useful info from it.:

I'm Tracy, 39 and have been trying to get pregnant.

I had my right ovary removed in 2004 because it was engulfed in scar tissue. This was because ten years earlier, I had a cyst with a fertilized egg in it, in the wall of my ovary and it blew up like a grenade. I had two kids after that, though. Hours after my second baby was born in 2000, I had my tubes tied.

In 2013 I had major surgery to repair my one remaining fallopian tube so I can get pregnant again.

In December of 2014, on ovulation day, I started having excruciatingly sharp pain in the area of my only ovary, on the left side. The pain shot into the tip of my hip bone and radiated along the top of my pelvic bone, down the back and ended at my tail bone area. It also shot down my thigh on the same side. I went to the ER many times and all they saw were two small ovarian cysts. I've had recurring ovarian cysts since puberty.

This pain caused me to basically become bed ridden. About two months later, a horrible burning pain started and this was in addition to the already severely sharp pain I was experiencing. This burning pain caused the hip bone pain to radiate down the front of my pelvic bone and ended in my pubic bone. So, now my pain was all along the top of my pelvic bowl, on the left side, from my pubic bone to my tail bone.

After being pawned off from Dr to Dr, I finally found the most wonderful OBGYN surgeon. She was worried and did another ultrasound. One of my cysts had all of a sudden gone from being one inch to the size of a lemon. In the ultrasound, it looked like it was a hemorrhagic cyst. But, with the severity of my pain, my surgeon was worried my ovary was possibly twisted and dying. So, she got me into surgery the very next day. This was now three months after the pain started, March 3rd.

She went in laparoscopically and found a little bit of a lot of things. The cyst was fibrous, caused by endometriosis. My fallopian tube was stuck by adhesions to my bowel. There was a bit of endometriosis on the right and left side of my uterus, but luckily not inside it. On my bowel, there was some scarring and a little endometriosis. Along with all that, my one remaining tube that was repaired in 2013, had been blocked by scar tissue.

My amazing surgeon gently removed the cyst, scar tissue/adhesions, endometriosis, and unblocked my tube. She cured my pain, she's my hero!

One reason why I wanted to post all of this is to let you know that it's possible to actually get rid of the pain and save your reproductive organs so you can still get pregnant. If course, there are different circumstances for some, but not for all.

VERY IMPORTANT:

My surgeon was specially trained to remove ovarian cysts THE CORRECT WAY, with little to no damage to the ovary. Apparently, in medical school they're taught to just rip the cyst from the ovary wall, which will cause damage, scarring. My surgeon went to additional schooling, to be trained as a specialist, to gently tease cysts away from the ovarian wall and preserve the egg reserve as much as possible. It takes a long time to do such delicate work, but if you still want kids it's definitely worth it!

One other thing I want to mention is, each month when an egg is developing in the ovary, it develops inside a cyst. But, at that point it's called a follicle. Once you've ovulated, the follicle is then called a cyst. They typically go away on their own. I've had them linger a little, sometimes for months, since I started puberty.

Anyway, my first period since my surgery started a couple days ago. For the first time, I'm feeling cramps the way normal women do. I am having some ovary pain, but that's normal this soon after surgery. Also, my period is heavier than I've ever had, insanely heavy. But, that's normal after this surgery as well.

I hope this info helps put your mind at ease and educates you a little about what you may be going through. There's hope! I personally recommend the laparoscopic surgery, but only if you find a surgeon who specializes in this sort of thing, one who's had additional training in making sure they're as careful and gentle as humanly possible. Laparoscopic will cause far less internal scarring than major surgery. I read that something like 80% of people will have internal scarring after major surgery. That's why, no matter what kind of surgery you have, you need to be extra careful about not using your abdominal muscles for about 6-8 weeks. If you need to cough, sneeze, vomit, etc, make sure you have a pillow you can press on your belly to prevent any major abdominal movement. That can help prevent adhesions like I had.

Hi hun at the min I have been having some bad problems too. I got diagnosed with IIH a year ago I was struggling a lot but got myself on track. Then in December/January my IIH started playing up again so went to doctors and they sent me to hospital stopped in 5 days got sent home on a higher dose of my tablets and strong pain killers a week later went back to doctor due to having trouble breathing. Got sent back to hospital stopping in 2 days turns out the high dose what they gave me for my IIH had set off my child hood asma so got sent home on 2 asma pumps, lowered IIH meds, steroids and pain killers. They day after I came out which was 3 week ago my belly swelled up like a balloon, been shoved and push with doctors giving me blood tests always coming back normal, saying its gas etc got a ultra sound done today and turns out I have a cyst in my ovary's. They did not tell me how big etc but they just said wait for a phone call to see what doctors want to do etc. Just hoping my swelling goes down soon and the pain goes, I can't fit in my work clothes been off for 4 week. In just 3 week I have gone from a 14/16 to a 20/22. Sorry for rambing on! :-)