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Please help. Suffering. More than IBS?

Posted , 2 users are following.

paul87769
paul87769

Sorry to bother everyone but I would be so grateful to get some help.

Ive had two years of bowel complaints, always having to go and cramps, just been diagnosed as IBS after colonoscopy found superficial ulcers and inflamed ileum but no signs of Crohns etc.

Been having daily nausea, dry heaves, for 8 months, along with burning pain stomach. Have been on Omerprazole, Lanzprzole, but after months on these was still having nausea and sickness. GP referred me to see Gastro with view to having endoscopy. However the specialist thought the nausea and pains was part of the IBS. He instead gave me a CT scan of the small bowel. He then stated that it was indeed 'IBS with spasms and malfunction of insides.' He put me on Zantac for the stomach and sickness.

After two months of Zantac the nausea and sickness and come back again, daily and dry heaves, find it hard to eat proper meals. Also suffer from fatigue and generally feeling unwell. The GP said the CT scan of the small bowel would have showed up if there was anything wrong with the stomach. Is this correct?

The GP just seems to think that the nausea and burning stomach, heaving, is due to the IBS. It seems like I wont be having the endoscopy after all. Can anyone please give some advice on what I can do? I feel like I'm getting nowhere. Would an endoscopy show anything? The specialist said even if it were stomach ulcers, the acid meds would clear them up so he saw no point in looking inside the stomach. I am at the end of my rope at the moment and so tired of feeling this way.

 

1 like, 12 replies

12 Replies

  • hope4cure
    hope4cure paul87769

    Posted

    Slow down take foods out off UR diet that cause issue. 

    See online diet or IBS on this forum under symptoms.

    cheers

    HOPE

  • kerry91
    kerry91 paul87769

    Posted

    Hello,

    I've suffered from IBS and stomach problems for years. I agree with the last post, the answer is completely in diet. Try keeping a food diary, write down everything you eat and drink so you can monitor your reactions. Often people find that cutting out dairy and/or wheat makes a big difference. Good luck     

  • paul87769
    paul87769

    Posted

    Thanks for much for both your comments, diet is one thing I am looking into at the moment and trying to work out what works and what doesn't, so thank you, I hope this helps.

    So would you say the daily nausea, dry heaving, burning stomach, both before and after eating, is the IBS? I just don't understand why they keep giving me acid-blockers like Omerparzole to take for month after month, I thought these were for ulcers, and if so wouldn't they have healed the ulcer by now (8 months plus of nausea and pain?) Has anyone else with IBS experienced similar nausea and sickness?

    • kerry91
      kerry91 paul87769

      Posted

      My stomach problem is atrophic gastritis ( a bad version of gastritis) and the symptoms are exactly as you describe; The doctor probably isn't bothering to put a camera down as he's sure it's gastritis and omeprzole is the treatment. however I found this medication made it worse for me, if you look it up it eventuallu causes the acidity it's meant to cure. I came off it (awful acid rebound) and sorted myself out with diet. It takes some time but believe me it works; I eat fish, seafood, white meat and vegetables (no tomatoes or onions) no spices, no alcohol, no diary; you have to use your imagination in the kitchen; 6 months on no nausea, rare dry heaving and normal stools. It may not take this long for you, once your stomach lining is healed you can reintroduce food. Hope this helps you, I know I was desperate. 
  • paul87769
    paul87769

    Posted

    Hi Kerry thanks so much for taking the time to reply, it means a lot to me. I am desperate also and have been for a long time, more so with the doctors just wanted to give medication and ignoring that it isn't working, oh if Omerprazole doesnt work, have some Lansprazole etc and all on repeat prescription, month after month. Like you I also researched these tablets and found that especially longterm they do more harm than good.

    I will look at my diet and try those things that you say. I.. like you.. dont drink alcohol or have any spicy foods at all. I am just so fed up of feeling like this, especially being young. 8 months of it and I ashamed to say its so bad some days that I feel I dont want to be around anymore, espcially when the doctors are so blase about it. Thanks again for your reply, it helps just knowing that someone else understands, and has found a way to deal with it.

    • kerry91
      kerry91 paul87769

      Posted

      Hi paul,

      forgot to mention that I also have IBS the two conditions can go hand in hand. I find eggs are really good as they're easy to digest and when you have nothing else to eat a hard boiled egg is filling. I also munch on carrots (apparently they're good for healing the stomach. This time last year I was like you and it threw me into a depression, today I'm back to work and feeling good. Best of luck. 

  • paul87769
    paul87769

    Posted

    Hi thanks for your message, it really helps getting advice from someone who has been through something similar. I am very low atm cos it's really destroyed social life and also work.

    Are you on any medications at all, or did you do it all through diet? I know you said you were on the acid blockers like me, but did you/are you on any medication for the IBS? The doc has given me some drug for IBS for the gut but again it seems it has lots of side effects sad So don't know if I should take all these medications (and yet still feel ill) or just go without and try and do as you are doing now with the diet, and not take the medications they want me to take.

    • kerry91
      kerry91 paul87769

      Posted

      Hi Paul, I took something for IBS many years ago but stopped taking it when I changed my diet. I'm not on any medication for my problems I do it all naturally. I understand completely about the social thing, it's really hard to eat with friends in a restaurant etc but believe me it's worth it. from what people have told me in discussions like this I think  the gut has a huge effect on your mood, I know I was depressed last year, but once you get better it lifts. Get yourself on a diet and I'm sure you'll see the results quickly.   
    • emma666
      emma666 kerry91

      Posted

      Hi Kerry.  I too am suffering with similar stomach problems (gastritis)

      and am following a diet very much the same as you. Just wondered how your stomach was now after six months of diet. Have you been able to introduce any new foods in without reactions?

      Also, were there any more snacks you were able to have as I find im not eating enough and dont always want to eat another meal in the day. Unfortunately, I cannot have carrots, I am intolerant to them.

      Thanks for your help, Emma.

    • kerry91
      kerry91 emma666

      Posted

      Hi Emma,

      I can now allow myself a little treat every now and again, the problem is I want to eat naughty things all the time and it makes me ill if i persist. I'm back on track after being tempted during the holidays (and paying) I always make sure I have some hard boiled eggs in the fridge for when I'm hungry.

    • emma666
      emma666 kerry91

      Posted

      Hi Kerry

      Thats the trouble with me, I like sweet foods and as soon as I start to get better, I start cheating. Ive had my problems for 18 years and think I will never be right because Im not strict enough. I'll keep trying tho!

  • paul87769
    paul87769

    Posted

    Hi just to add new info.. the specialist had diagnosed it as IBS with gastro motility.

    Still suffering with daily nausea, pain, despite best efforts.

     

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