Please Help. Undiagnosed Disorder

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Please I am looking for help understanding if my issue is related with the adrenal glands and the cortisol production. I think I am in the right place since many of you should know the symptoms of that. Please advise me. I have been sick for seven years and no Dr knows what is the cause of all my symptoms. I have chronic inflamation of my face and abdomen(super inflammation), heat intolerance, hives, blood vessels inflammation, bring fog, zero energy levels specially around 3 PM , mood swings, sugar and carb cravings,  muscle weakness, just to mention a few. Have any of you experienced those symptoms? Please help me.

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  • Posted

    I'd advice you to have a saliva cortisol test. I do not know if in US all endocrinologists want to accept a saliva cortisol test. You can ask the pathology lab a list of doctors in your area who accept and interpret saliva cortisol tests.

    I had a lot of sugar and carb cravings when I was younger. In my case I think it was my hypothyroidism.

    Have you been checked for hypothyroidism? You need an endocrinologist for that as well as for the adrenal problems.

    Have you seen endocrinologists before?

    Tell us a bit more about  which doctors say they do not know what it is. Have these doctors given you tests? which tests? Can you send results to us? Some people in the forum are very knowledgeable and can guide you but more information is needed.

    Sorry there is no quick answer

    Keep your spirits up!

    monsie

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    • Posted

      Hello, 

      Thanks for the response. I appreciate it very much. I have seen primary Drs, an endocrinologist, rheumatologists, a gastroenterologist, an allergist, a nd a dermatologist who diagnosed me with urticaria because of chronic inflammation of the blood vessels. They have done all kind of tests but everything comes back negative even if more symptoms appear and it gets worse. They did thiroid, lupus, arthritis which came back almost positive but not enough for a diagnosis, and cortisol which one time came back low. The saliva test that you recommended I think is a great idea and I asked a long time ago to do it to the endocrinologist but he said he did not find it reliable. I asked anyways and he said no. But I will follow your advice. Can you please tell me where to get it? I have a lot of blood tests which I can send to anybody that can check them. There is one thing that always is low on my blood tests and that is alkaline phosphatase but Drs said nothing to worry about when I know it means something. It has been low for years. Thanks again and any info is appreciated.

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    • Posted

      Hi

      Mainstream doctors do not want to know about saliva tests. Only holistic and integrative, functional doctors. Do you live in UK? whenever you live type in your search engine: saliva tests online and contact the Pathology group  who make those tests  and ask for a doctor to explain the results for you. Also say that you need a doctor who can prescribe medications. If you do not ask for that type of doctors you may find yourself seeing a holistic doctor who only gives alternative remedies. I'll write to you  later. I must go now.

      monsie

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    • Posted

      Thanks a lot for that information.  I will do that. I live in US, but sadly most of the doctors are like that. Thank you. How is your hypothyroidism now? Better?
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  • Posted

    I sincerely hope you find the doctor you need. Hypothyroidism is a mine field . I am dealing with it the best way I can. I take my body temperature everyday at 5 pm, but it just does not want to go up to 98.6F and stay there which is a sign that my hypothyroidism is not under control. But I'll keep on trying. At least I am in the right path so to speak.  I live in Australia a country with not many people... US has more choices there are more things on offer. I know you have the issue with the Insurances and that. I suppose trying to find what is appropriate  for one's situation can be  tiring, but at least the opportunities are available.

    Thanks for your interest...

    monsie

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  • Posted

    Have you been checked for Cushings Syndrome? I have no personal experience of it but read about it when I had Conns Syndrome which is also an overproduction of hormones caused by the adrenals. It might be worth asking your doctors.
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    • Posted

      Thanks for your advice. They have tested me but they don't consider the test to be that high even if is more than what it should be. 

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  • Posted

    I have found your reply. I do not know what to think...  it is high but it is  not Cushing's? What have you been recommended to do next? How are you feeling?

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