Please help with advice about brain cancer!

Posted , 3 users are following.

My sister has 3 kids (41 years) in May 2017 was diagnosed in Anoplastic multiform glioma.

Pathology report shows:

MGMT - Non methylated

IDH1 (R132) negativ (IHC)

PCR signal unmethylierte sequenz - positiv

PCR signal methylierte sequenz - negativ

ATRX: partieller Verlust (IHC)

H3K27M: negativ (IHC)

From August 2017 she got

Temodal for 3 months (7 days in, 7 days off) growing continue.

In November she got Avastin +, Ironatecan, growing continue.

December: just Avastin

Now she is getting:

Kepra 3000

Vimpat 100

Dexamethason 8 mg

Vitamin C, B, D

L-Carnitin+Lymphdiaral

Boswellia serrata

Unizink

Kytta Sedativu

RSO - 0,5 a day

Ajurvedic treatment

Plan to have Optune in 10 days.

So far we cant stop the growth.

Can you please advice useful protocol/treatment plan which can help stop tumor grow?

Many thanks in advance.

Best regards,

Leonid Gluskin

0 likes, 2 replies

2 Replies

  • Posted

    I'm so sorry that your sister is suffering and that she and your family is going through this.  Unfortunately, no one on this site is a doctor.  We are here to help with comfort, practical advice and support.

    I don't know your location, but in the USA there are several large cancer treatment centers that might have the expertise to assist you.  

    Please know that you are all in my prayers! 

  • Posted

    I am really sorry about your sister.

    Take a look at this below. I am not selling anything and have no interest, other than in my own survival. I take both Ruta and calcium for glioblastoma. This has been alongside conventional treatment. I am 21 months into treatment. The homeopathic remedies are obtained locally here in the UK

    Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.