Please I need help!! Labrinthitis?

Thanks so much for your reply. Not really any explanation for the spots on my brain? Could've been there front a car accident about 15 years ago I have another one in May.

This is the most awful thing. I just want to be better!! I miss life.

I think tiredness and looking at my phone is bad for me. Also when I'm due my monthlies? Sitting for long periods of time like when I have tea with my nan? Arguments and just general stress? Being hot?

Thankyou again for your reply I just need some support? I don't have much family and they live far away. Also my husband works away. So avoiding things like shopping I can't do?

I just hope for healing soon!

You're most welcome Tasha.  I did also hope for healing soon and was thinking that everything would resolve itself and i had a timescale of initially 3 months.  Over a year later i am no longer placing any timescale on this condition but i do believe that our bodies are trying to heal themselves and were it not for this fact things would be considerably worse.  I always look at it as if i were a computer that something has gone wrong on my hard drive.  Likewise i had a head injury 18 years ago which left me with partial deafness and permanent tinnitus in my left ear.  They now think that it also has caused this vertigo but i hadnt' noticed it until it got this bad.  It doesn't help if you are alone a lot but it does help me to know that i am not completely alone and there are others on this website who know exactly what i am talking about because we share the condition.  Otherwise we would be all alone if we were the only one that had it.  II have said to my husband to look at me from the outside i look normal but inside i am all over the place and sometimes it is really exhausting.  So be gentle with yourself and patient and like it seems most people who post on here things do get better slowly, if not completely resolved,  but it does take time.  Take care of yourself xxx

Hi Anne see no improvement for us ,I'm all over the shop today ,my tinnitus is low. But my what a bad head ,ihate the low ear days ,makes my balance so much the greater .always high anxiety as today because of it. Plus I get IBS symptoms ,as today .

   Today through the mail I've got the York test (full one ) look to see if it is allergy related doing this  as I e got this rhinitis and eczema going  had the basic couple years ago at Hsp  that was no help only slight raised up 2 .so that was of no use  after I had that head virus  I asked my Dr  has this virus left me with allergies ,non commital to me and what I asked .

   I then wonderered menopause to it all  as I thought I'd gone through that. But then told some females can go through a second ,as I had hot flushes back again ,placed me on some non HRT cream. That didn't help either 

     Now I'm back to allergies ,as was my first thinking. Wish I'd followed through with that gut feeling I had. will get this private allergy test off. Then go from that  is it Gluten etc. That gives off these symptoms also ,including anxiety ,always wondered why that's never left me since I got head virus .

 You said to your husband exactly what I did. I may look okay on outside,even again today when that test came .

     So here we are still in the same situation. It just seems never to end,and new joining these sites every blooming day looking for the same answers to it .

  No word on Darren ,wonder how he's doing with those varifocals  hope he pops in and tell us.

  Gillian on yesterday ,had another MRI and saw physio  not holding her breath either that will help her out ,she was on site yesterday .

  Think of you Anne xxxx

Thanks Marlene, i'm on a steroid nasal spray now.  My ears, eyes, nose and throat are bunged up.  The menopause never finishes, i had a patient in her 80's who told me so, she was sitll having hot flushes. She made me laugh cos' i'd asked 'when does it finish?'.  Speak soon, big hugs to you too. xxx

Hi Tasha, listen up hun. We had the same EXACT life. I suffered from vertigo since i was child, then not so much as i got older, i got sick from a stomach bug or some crap in November 2013, woke up extremely lightheaded and off balance. Went to my doc who told me it was due to the virus i had. Weeks later no virus yet i was still lightheaded and dizzy, couldn't concentrate, ny anxiety spiked up again. I was terrified. Went back to another doctor, drew blood and sent me to ent and neuro. Ent told me it wasnt vertigo, i was devastated, said to myself thats it, im dying. My neuro sent me to get a ENG i believe it is called cant remember it. Found out i had an imbalance in my left ear, and sent me to vestibular therapy, but in my mind I said to myself, imbalance and vertigo ok, but vertigo is not 24/7 and i literally felt sick 24/7 so i was paranoid, i got laid off, couldn't walk a block without feeling like i was gonna pass out, gained 30 pounds, my life was over to me and i cried every singke night. Saw another neuro who said it was anxiety and due to my past relationship, in his words delayed reaction to my brothers death who passed away 2 years prior and my relationship during that time, which I was pregnant at the time, tried to put me on anti depressants which I didn't take. I literally saw 6 or 7 different doctors, MRI Blood work, everythingggg possible, cardiologist who said everything was normal, at 25 going through all of this with a 2 year old..insane...2 years later, 27 and still lightheaded but i learned how to deal with it alittle, i go to work, feel dizzy alot even flushes where i feel im going to pass out, met an awesome Neurologist who diagnosed me with Vestibular neuritis. He said i have inner ear nerve damage, unfortunately it doesnt heal but the brain can learnto adjust to it, he put me on pills to help with the symptoms which i dont take because I hateee antidepressants but they can be used for these things. Maybe i should take them but im stubborn. Well now im waiting for a VNG test which will rule out some other things. I know its extremely hard to kive with this, take it from me, dominican girl who loves to dance spin, go out, and do so much which i have to limit myself, cant over stress, i have to sleep atleast 7 hours or if not my body would be off the next day, my eyes feel weird even my body, legs my arms, so i advise you to go to look for a neuro,, if you were in NY i would recommend my doctor to you, he is great!, good luck and i hope you can have some ease knowing you arent alone.

Hi Anne ,you've had that for some time ,see those sprays hurt me more .

   I've looked up Gluten free society site that gives off a list of our symptoms 

  Hormone,Balance/ Tinnitus ,Acid reflux  IBS  Thyroid etc all coming from Gluten allergy,Gluten intolerance  Gluten sensitivity  .

 Found it interesting  this Dr Peter Osborne explained all 3 and how they behave  Maybe this can be the bottom line for why some of us never feel better. And can't get back. All down to our food intake .Those of us with BP probs he says Cyclical Hypotension Hormones .all from gluten .i wasent aware you get Gluten arthritis is that the neck ache we seem to get with this balance ? The first he mentions was Entercolitis syndrome .

  That was my homework today on our problem ,my cousin just left had a good chat  she's got few of these probs ,got the balance  and. Gastro ,and IBS hence we got on with this .Go check this site out Anne .still think it's going to be us that sorts this all out .

  I've got a book on meno ,that lady you spoke to wasent wrong. One I read was still on HRT at 85 yrs ,and her 59yr old female Dr reckons women should be on hormone replacement until they die ,as she intends to be .

   What a continual mess we stay in .stay warm Anne xxxx

thaks Marlene, i will check it out.  Yes, what a mess.  I had a chat with my husband yesterday.  He said when he saw me leaving for work yesterday morning he realised how unwell i looked.  He said he thinks it's time i cut down my hours and then retire.  I am working towards retiring next year now as it is all taking its toll i guess.  I said thanks for the feedback because sometimes i don't realise how all this is having such an effect on me overall and keep on keeping on until i drop is perhaps not the best way to deal with it and i have to listen to someone who knows how it is effecting me rather than just relying on being used to feeling this way for so long and just getting use to it.

Perhaps it is for the best as i was due to retire yesterday and then postponed it at the last minute.

Anne ,yes I think there comes a time when you have to look after you ,have to hold your hands up ,and just quit .As my husband always say ,no pockets in a shroud ,you know what I mean .We keep going and going ,and it detrimental to our over all health ,and this has all taken its toll. Glad your husband noticed how you were looking ,yes it's good to get feed back ,me and my cousin do that ,love her to chat to ,and it's visa versa ( should have been my sister ) so we're close that's our bonus .

    So next year your be officially retired ,that year will go quick. Never know Anne all this will be gone by that time .then sit back and relax and enjoy the long awaited retirement .

  Have a look at that gluten ,see what you make of it ,be glad to get back the tests Im sending off .If anything shows up. I can make the changes nessasary .My aunt and cousin and me blame foods we eat being sprayed and we then eat ,think more are getting that thinking. 

  Upwards and onwards .We can beat this  just keep at it I say ,answers out there for sure .Look how many of us alone working on it.No Dr in sight .xxx

thanks Marlen, let me know how you get on with your test.  I've had a look at the gluten site.  Have a colleague at work who is gluten free as she has been diagnosed. 

Well if we can't beat this it won't be from not trying hey?

I just want to say that you two ladies, you and Marlene, have the most positive attitude of anyone I have ever seen.  You amaze me in how long you have been dealing with this and you always keep looking forward.  You are an inspiration to this forum!!

Terry thank you kindly. 

Hi Terry 💝 thank you kind words they are .like Anne and others. Got to keep looking ,not give up ,the clues lies with us .Never let the medical people fob you off .Its not going to cut it ,we still have these days to get through ,not them .I have never spent so much time sitting ,all due to this going on ,messes with your whole life ,as you know to well yourself .

    So if we all do what we can ourselves,research what we hear  and ask questions ,what does our inner voice tell us ,we need to be doing .X 

Hi Veemae, which medication were you prescribed for your migraine vertigo?

Not to butt in but, a friend of mine here in the States has had great success with Topomax.  He was diagnosed with Basilar Migraines.

Hi Anne

I was originally prescribed imigran nasal spray, betahistimine hydrochloride, prohlorperazine maleate. These didn't help my symptoms and I was taken off and put on Amitryptiline, co-codomol and buccastem.  There was no improvement and I was taken off these and prescribed Almotriptan.  This has proven to be the most effective for my migraines but I am only prescribed six tablets at a time as the dosage is very prescriptive.

I have recently been put back on Amitryptiline for pins and needles symptoms, which I get on and off, and I'm continuing with Almotriptan.  I take Prochorperazine if I'm going to travel to help with the vomiting but it doesn't seem to help very much.

thanks Veemae, i've had all of the above anti emetics and anithistamine you mention without any benefits at all.  I don't get nausea just dizzy.  I apparently get silent migraines which are affecting my balance but to be honest i'm not really convinced about that either.  I have also been on the MAV (Migraine associated vertigo) diet without any improvement.  Do you actually get migraine headaches and is that why you are on Almotriptan?  Good to hear it's helping.

Hi Anne

Yes, I get terrible migraine headaches, which I have been getting since childhood but back then I wasn't properly diagnosed.  Over the years I've had it bad but five years ago they got to be almost constant and then the onset of the vertigo (migrainous vertigo) meant I had to retire early from work.  When I get bad I can be vomiting for three or four days, which leaves me very hydrated.  My vomiting episodes has decreased over the last couple of years and it tends to happen now if I travel, particularly on aeroplanes.

 As well as medication I have had acupuncture and cranial treatment and continue to have regular chiropractic treatment, which also helps.

Glad to hear Veemae that you're treatments are helping.  I find flying really affects my ears/balance for days afterwards.  Obviously our ears are very sensitive.