Please need some advice !!

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Recently was in the hospital from severe headpain which was diagnosed as migraines. I'm having sevre lighheadness and head pressure lately nothing seems to get rid of it. I have had all the tests done from mris to ct scans all came back as nothing is wrong. I've been getting really tired lately every time I wake up I feel totally beat like I haven't slept at all. It's getting to the point I don't know what to do anymore and I'm getting very depressed from it. I can hardly do stuff anymore do to the headpressure get so dizzy from it. I'm only 23 I want to be enjoying life but can't seem to be able to.just need some help and advice on what to do. Feel like I'm the only one going through this. Could this be chronic fatigue ?? 

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  • Posted

    Hi Cassie,

    Have you been tested for celiac disease? Migraines are a common link, almost everyone I know who has CD had migraines.  Hormones can also cause the migriaines.  They suck. I'm so sorry you have one!  WHat have you tired so far?  Ice and heat, ice and heat for 20 minutes 5 on 5 off helped me. I went on a food eleimnation diet. I get migraines if I eat caffeine; chocolate, tea, coffee, it all makes me sick two days after I drink/eat it.  And my hormones still give'm to me sometimes too. 

    hope you feel better soon!

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    • Posted

      Thanks for the reply !! And yes I have been years ago never had it. I do a lot of ice when my head was worse I lived off of ice for days. I mostly have a lot of tingling in the back of my neck now and also lots of head pressure. I wear sunglasses during the day so the light doesn't bug so much. I find during the day I lack a lot of energy now and wake up tired if I have really bad head pain. I'm supposed to see a Nero in 3 weeks so hoping to get some answers there. Also at night my energy level picks back up again. This have been going on for 9 months now almost a year so it's getting very frustrating for me. 

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    • Posted

      Even if you don't have CD, they've done studies on on people with migraines and eating gluten free and had miraculous results. It's with a try, bt I won't pressure you. 

      I meant to say put the ice and head on the neck wher e it hurts 😜 Guess I was not clear.

       

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  • Posted

    Yes, it could be ME/CFS. This is a very specific illness with many possible symptoms, including unrefreshing sleep, severe fatigue, headaches, and the other symptoms you mentioned. (Note that chronic fatigue, on the other hand, can be associated with many diseases.) It's impossible to tell from your post, though, whether you have ME/CFS. You might want to go to the "solve me/cfs initiative" website to see if the symptoms listed there resonate with you. If they do, the first step to getting diagnosed is to see a doctor and get a blood panel done, to rule out other illnesses. If that panel comes back normal, I think it's best to go to a specialist to get diagnosed, preferable an infectious disease doctor or a rheumatologist. There's no cure for ME/CFS, but people can get better. Because you're so young, I believe you have a better chance of improving if you take good care of yourself. Get plenty of rest and pace yourself, Do not try to push through the fatigue. If you keep going outside of your energy envelope and crashing, you may reduce your chance for a recovery (according to Dr. Lucinda Bateman--a prominent specialist in the U.S.) I'm very sorry you're having to deal with all the symptoms you list.

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    • Posted

      Thank you for reply Jackie I'll defiantly look into what you suggested  !just I've been waking up tired some mornings or get tired during the day. So I don't know if it's do to my head pain I get everyday. So it's very frustrating every doctor I ask about this just shrugs it off like it's all in my head. I wasn't like this last year all really started when I got my headaches. 

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  • Posted

    Hi Cassie having suffered with crippling migraines for many years and tired many numerous amounts of various medication many of which made my other illnesses and symptoms worse and unbearable my neurologist suggested Botox. For me it's been a miracle to reduce the migraines that I've suffered for over a decade. whilst the 9 injections aren't nice in anyway. To know I can now go for a period of time without suffering in the way I was I can put up with the injections. It's not for everyone and medication should be tried first. Plus meditation and mindfulness also helps and is a great holistic approach but I'd also advise looking into your diet

    Good Luck

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  • Posted

    I know exactly how you feel,it does sound like CFS , I have the same symptoms my problems started at 17 I am 58 now
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    • Posted

      Did it get any better for you ? I'm thinking of getting my sleep tested. I saw doc about it he said I couldn't have it. He said people only get dignosed as that when they don't know what else it is.

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    • Posted

      When you say "I couldn't have it," does the "it" refer to ME/CFS? Because if so, the doctor is not giving you correct information. For a knowledgeable specialist, if blood tests come back normal, the specialist can diagnose you by asking the right questions and hearingf about your symptoms. I was diagnosed this way after only about 3 months with ME/CFS. It is not necessary to wait 6 months, like some of the current literature says.

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    • Posted

      Yes I asked if I could have it he said no. I just feel like I want to sleep all the time. I'm getting checked to see if I have sleep apnea or not as well.

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    • Posted

      I went to the doctors with a list of symptoms 2 weeks ago. Everything's gone down hill in the last too years since I had glandular fever..that turned in post viral syndrome.... now I'm convinced it's developed in to cfs / me . I have researched a lot and understand it's not the easiest illness to diagnose. I have had a blood test and all is fine, I was very adamant I wanted a re feral to the cfs clinch which is the next step. I read up that a amatryptaline is used for cfs sufferers. I asked my doctor if I could have them to help until my re feral is actioned. I have slept like a log for the past 8 nights and seem to feel more relaxed instead of over thinking about my symptoms. Hang on in there. Book another appointment

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    • Posted

      I'm on that medication already been taking it for a few years now. So not exactly sure if I have cf or not planning on seeing a doctor today at least I just can't keep going like this. Getting to a really bad place.

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    • Posted

      People react very differently to meds. Also, if you've been taking a med for years, the efficacy of the med can go way down. Whether or not it's helping you is no indication of whether or not you have ME/CFS.

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