PLEASE READ IF YOU HAVE UNEXPLAINED UTI SYMPTOMS

PLEASE READ IF YOU HAVE UNEXPLAINED UTI SYMPTOMS

I will try to make this as short as possible but unfortunately my story, like many others I see here, is long. i have been dealing with this for almost 5 years. 24 y/o female.

fall/winter 2015: developed what I thought was a uti after sex and was treated for a uti without being tested for it, based on my described symptoms. went back to the doctor saying that i still had a slight discomfort urinating, but the uti test was negative to i was sent on my way. was informed by a guy i had slept with he had chlamydia. went to ob/gyn and told her i was told this. she prescribed me the typical one dose of azithromycin. i did not feel relief from the discomfort while peeing. i went back to the ob/gyn convinced i was not cured of the chlamydia. lab results indicated i was negative for chlamydia. doctor told me i was having anxiety "from the thought of having an std"

2016-2019: symptoms progressively got worse. experienced constant discomfort urinating that sometimes was outright pain, discharge that ranged from clear to bright yellow/green and always mucus-y and always a LOT of it, pelvic pain, lower back pain, itchiness that would be so severe it would wake me up in the middle of the night, throbbing pains inside the vagina randomly, an extremely sensitive clitoris, and a constant feeling of burning sensation inside and outside of the vagina. eventually i even felt symptoms in my anal region. I also would randomly get fevers and chills. I went to 7 different ob/gyns, a dermatologist, an allergist, a urologist, and a urogynocologist. all my tests for everything always came back negatives. despite having high white blood cell counts, doctors basically all told me i was making it up or just had really bad anxiety and was overthinking things. i insisted that my pain was severe and very real. doctors tried to treat me for bv, yeast infections, and even prescribed 2 weeks of doxycycline just for good measures. i felt minimal if no relief. the only thing that seemed to help was coating the area in olive oil. towards the later years i also felt tired all the time, as well as flat out depressed and anxious. I could not understand how no one could figure out what was wrong with me. i graduated college and felt i could not hold a job because of how much pain i was in. i could barely stand to have sex, and if i did would bleed after usually. my periods became irregular. I became obsessed with researching possibilities online.

2020: Finally, I discovered the mycoplasma forum on reddit. I demanded my original ob/gyn do a PCR test for mycoplasma. he had never heard of it. i insisted. I went a couple days later to an infectious disease specialist to have her perform the same test, plus antibiotic resistance tests (i was scared of getting a false negative and figured two tests wouldnt hurt). I have been confirmed positive just this week (Jan 2020) for BOTH mycoplasma genitalium and ureaplasma, as well pneumonia of the urinary tract. I am waiting to hear back about the antibiotic resistance as it takes longer. being as i had previously been on 2 weeks of doxy without relief, I asked for 14 days of moxifloxacin. initially i had felt a little better and became hopeful, but today (day 9) i have felt my symptoms return strongly. i am so upset that no one suggested these tests and that i had to demand them. i'm so angry at the multitude of doctors that suggested i was "crazy" all these years. i was hoping someone would have some advice for me. i am terrified reading online about how these infections are very hard to cure. i cannot live with this pain my whole life- it is unbearable. i wouldnt wish this physical, mental, and emotional stress on my worst enemy. i completely have forgotten what it feels like to pee without pain.

Crazy how doctors always tell you not to worry yourself and read stuff online- when that is the ONLY thing that that helped me get answers. i knew i wasn't losing my mind! to anyone who is out there suffering and not getting answers- ADVOCATE FOR YOURSELF. You know your body best and you know when something is not right!

what do i do if i finish 14 days of moxi and still feel symptoms? i didnt respond to 2 weeks of doxy, should i try 3 weeks?

due to my lower back pain and pelvic pain, i am terrified i have permanent scarring on my kidneys and/or ovaries. what tests can i ask for to determine if this is the case? is infertility from this permanent?

i have never even heard of pneumonia in the urinary tract. do you think this is unrelated, and that the ureaplasma just has left me susceptible to other infections?

I have had this for quite a long time- how can i be sure it is gone? obviously i am not going to have sex until i produce a negative result to prevent reinfecting.

has anyone experienced reactive arthritis from this? i believe i am.

I HOPE THIS HELPS SOMEONE ELSE!!!!

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