please someone help me, my saddness is just too much

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I was diagoized with Hyperthyroidism about 2 years ago, this doctor told me that it was just a fluke, my mother had hypothyroidism and was Obesite she was over 500lbs i never had a good appepitate my whole life but i ate. now for about 9 months i have had horrible eating, and i was always around 128 the highest down to 118lbs never went any lower and now i am only 99 lbs and can't gain weight. no doctor will help me because they say my t3-t4 levels are at its normal level. but not knowing that this any everything else that is happening to me that i would lose my husband over all this Bullsh--. please i need someone to help me figure out what to do and what other kinds of tests i need for these doctor's to do. my heart is breaking and my soul feels broken.

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  • Posted

    You need to know all your lab report results.  If your TSH level is less than 0.40, you are considered as having hyperthyroidism, even if on medication your T3-T4 levels are normal.  In some labs the value diagnostic of hyperthyroidism is 0.70.  So always ask for a paper copy of your lab tests and keep a file on them so you can see your progress.  You also need to know your diagnosis and there is no thyroid diagnosis that I know of called "just a fluke" so ask your doc what your diagnosis is and why he/she thinks it is that.  I have a friend who had a colonoscopy where the doctor used a scope that was too big and damaged her.  She had thyroid problems and extreme weight loss ever since, probably caused by a tear in her internal organs.

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  • Posted

    Oh I am so sorry. Unfortunately I don't have much advice because I am in a somewhat similar predicament and have no clue what to do either. I've had symptoms for 9 months but I started out 140lbs so I'm only down to around 120. I have hyperthyroid symptoms yet my levels keep fluctuating so they say they can't treat it. It is so incredibly frustrating and terrifying. I don't know if you are also experiencing the mental symptoms that can come along with, I am and it makes it so much harder to emotionally deal with the other symptoms. I can't imagine going through that kind of a trauma at this point as well. That just really really sucks.

    My levels fluctuate so often that I am currently on a plan of testing very month and waiting to see if it does something consistently that they can treat.

    You only mention your T3 and 4 what about your TSH levels were they normal too? I've had points where everything was normal but my TSH was elevated.

    So sorry I can't be of more help, I can only commiserate. Hang in there.

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    • Posted

      The only diseases of thyroid I know of with such fluctuating levels are Hashimoto's thyroiditis or pheochromocytoma.  Pheochromocytoma is a disease of the adrenal glands but it causes fluctuations in thyroid hormones.  Ask your doc if there is a possibility that you may have either of these diseases.

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  • Posted

    Hello Mary I was the same as you my mother had graves and lost so much weight I had an aunt who died. I nearly died I could not stop- eating my heart was trying to leave my body and I was losing so much blood.my doctor told did a blood test which was in the normal range and said I was going though the change and booked me in for hysterectomy it was only when I collapsed at work and was taken back to the surgery where I saw another of the practices DR. he took my blood and at 10:30pm my husband got a call to get me to hospital first thing in the morning I was then down to less then 5 stone the endocrinologist could not understand why the first doctor had picked up the fact I was having a thyrotic storm. after many months of treatment and radioactive treatment I recovered. Most of my family have some form of thyroid problems. You must ask to see another doctor and be refered to an Endocrinologist I know how low you are feeling My husband or my sister came with to all my appointments as I couldnt take everything in they were telling  me.

    regards Jacky

     Ps I did not have staring eys or a lump in my throat as my mother had and this is what most Doctors seem to go on.

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