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PMR 5year got shingles xmas day

Posted , 7 users are following.

jean_b
jean_b

Hi   all .finally able to read any responses with advice as the dreaded adverrs which have been all over my pages here have finally  gone (fingers  crossed).i am on 5mg pred and developed shingles on xmas day got antiviral tabs after 3 hour wait at drop in emergency on boxing day.these did not seem to reduce the intensity of them --have had them all over left back and front rib cage under breast -so painfull -it took 3 weeks for blisters to go and am now left with scarring.But what is really hurting me know is the  post nueralgic pain .cant bear my  clothes to touch skin and stabbing pains still there-feel so exhausted .Am trying to avoid going on strong drugs that i know doctor will put me on-i cant afford to be ill with the side effects -i have husband ill and my son and children back home till new house built and ready. I just want to know of any of  us withPMR who have developed shingles and any advice on relieving pain and i have been  looking on internet for shingles info and apparently it could go on for some time-am so miserable -hiding tears too(mardy bum) but i have to get on with it like we all do -thanks fir any suggestions.

1 like, 4 replies

4 Replies

  • faye______00403
    faye______00403 jean_b

    Posted

    Treat yourself first......take the pain meds and rest.  Let the kids

    take over what has to be done and the rest will wait.  My mantra

    is I'm not going to be in severe pain if the docs have something that

    will relieve it.  Any good doc is not going to give you enough pills

    to get in trouble with....follow directions and you'll be okay.

  • reggie92967
    reggie92967 jean_b

    Posted

    Jean don't try to be the do all be all for everybody else, accept help from your son/children. With what your dealing with you need everyone to know what's going on & the pain & discomfort you're experiencing, don't hold back the tears. Sure they won't burden you or expect more than you can manage in your condition, be forthcoming. It's the best thing I learned to do in my life with family & friends. Prayers for a clearing up of the shingles.
  • Ellie1943
    Ellie1943 jean_b

    Posted

    Sorry to hear you're in so much pain still. It's probably the PHN, (post herpetic neuralgia). It can go on for some time but you should take any pain relief you can get off the doc at this stage. I was given amytriptilene after several months and not improving. It did help me but I had to make sure i took the tab at least 12 hours before I wanted to wake up in the morning. It certainly helped me to sleep. I'm now reducing gradually and see how it goes. I don't have PMR but do have osteo arthritis and loads of pain with that too. Just keep taking your meds and see your GP if you're not happy or still in pain. Best wishes, Pollyanna UK
  • EileenH
    EileenH jean_b

    Posted

    If your children are "back home" they are obviously old enough to take on at least some of the responsibility of helping in the house and looking after both you and your husband.

    YOU are also ill and in pain - so YOU also need looking after. So take the pain killers and let the others step up to the plate too.

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