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PMR and GCA

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iellen32
iellen32

Since my last flare up and the increase of my Pred from 19mh slowly adjusting to 20 mg and now 21 MG I notice an increase of appetite as it would be expected to happen.

I eat or drink something - a tea, or fruit in between meals as my doc told me to.

It helps.

I exercise daily and feel great for doing so.

I have GCA no pain though.

My questao - how has been your experience on the increase of the Pred ?

1 like, 3 replies

3 Replies

  • frank68910
    frank68910 iellen32

    Posted

    I was unfortunate to have a negative experience with pred.  It gave me the worst case of restless legs ever and I was up for days and nights-about a week until it got out of my system.  I had a msaller dose and barely tlerated it-felt hyper and my legs were sort of feeling a bit odd and then when he increased it wham!  awful.  I had the same reaction with mood swings when I got spinal injections.  I'd cry for no reason!  Also my legs felt like electricity was circling around them.  I will never have this again-ever
    • iellen32
      iellen32 frank68910

      Posted

      That's the way it shows we are all the way different so we must observe our symptoms, the response of our system and to do accordingly.

      It' s not a size fits all.

      I sincerely wish you find the correct road that will work for you!

      Take care

      🌺

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