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PMR and GCA

Posted , 7 users are following.

kitsalley
kitsalley

I was diagnosed with PMR about a year ago and have been on prednisone (20 and weaning to 6 currently).  Have recently started having bad headaches in the temporal area every afternoon.  Tolerable but bad.  I am concerned that I may be developing GCA but headaches seem to be the only sympton so far.  No vision issues.  I do have a bad taste in my mouth but had my sinuses checked out and they seem fine.  Any guidance?  

0 likes, 8 replies

8 Replies

  • kate85294
    kate85294 kitsalley

    Posted

    Hi

    How were you dignosed with PMR? Was it by blood test or scans?

    • kitsalley
      kitsalley kate85294

      Posted

      PMR was diagnosed by reaction to Prednisone and 'classic' onset symptons - shoulders, neck, arms then moving to hip girdle.  Now c protein shows high but sed rate has been mostly in normal range.  

    • kate85294
      kate85294 kitsalley

      Posted

      So the pain should be in both sides of the body? It can't be only on one side? Beacuse in my case only my left side from the head to my toe hurts.

      And all of the blood works were normal. Only my brain MRI was abnormal.

    • FlipDover_Aust
      FlipDover_Aust kate85294

      Posted

      I suspect you have either a very unusual case of PMR or something else entirely Kate.... do not give up pushing your Dr for answers!
  • lodgerUK_NE
    lodgerUK_NE kitsalley

    Posted

    Try this to releive headache, spread your fingers through you hair and gently tug all over your scalp.   Each hair has a little muscle attached to it and this can relieve the tension.

    You wrote '  Now c protein shows high but sed rate has been mostly in normal range.'  Are you saying CRP high and ESR low? 

    20mg to 6mg in one year is very fast, have you tried going back to where you were comfortable  say 10mg.

    I would be pushing your medics, this does not sound good at all.  

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