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PMR and Lyme Disease diagnosis.

Posted , 13 users are following.

shannon76840
shannon76840

i got PMR diagnosis s year ago i started at 15 mg and taper has not gone like I thought it would lol

i am on 10 mg and getting lower hasnt gone great I still have pain and stiffness in shoulders, arms, neck most mornings , even with split dose

less fatigue but still burning eyes and fatigue but later afternoon most days

We have always camped , hiked and do wildlife photography all of this has been shelved for a year!

We also have 3 dogs . I was diagnosed on the 23 rd of December with lyme disease

i see ND ( naturopath) tomorrow and she is recommending antibiotic treatment

I am concerned that my family doc will want to stop the prednisone

Has anyone experienced LYME and PMR

Any ideas , thoughts or suggestions welcomed

thank you in advance

Shannon Taylor

0 likes, 23 replies

23 Replies

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  • EileenH
    EileenH shannon76840

    Posted

    It is perfectly possible your symptoms are due to Lyme's disease and is is something that should be ruled out in patients if it is a possibility before saying it is PMR. As for stopping the pred - that will have to be done slowly to allow your adrenal function to return to normal and if you are reducing slowly for that, you will also see if you can manage the PMR (if it is that) at lower doses. You MUST taper the pred slowly - do not allow any doctor to persuade you to stop it too quickly

    • shannon76840
      shannon76840 EileenH

      Posted

      That is my plan but it is always so stressful fighting like I am seeking opiates! Not a chance in hell do I follow the taper plan he suggests. I have shown him the slow taper and last visit I believe he has maybe given up the fight as well.

      I have gotten to 7 once for couple weeks and have had a nasty flare doing his way. Now just down to 9 and am following the dead slow method. I sayed at 9.5 -10 for a few months as I still had managable pain but morning became more difficult So split the dose and it is better.

  • r.d.s26296
    r.d.s26296 shannon76840

    Posted

    SHANNON HI THERE

    STAY ON THE PRED , I HAD A VERY BAD CHEST AND LUNG INFECTION A FEW WEEKS AGO, AND I TOOK ANTI BIOTICS FOR TWO WEEKS AS WELL AS PRED ....

  • shannon76840
    shannon76840

    Posted

    that absolutely is my plan to stay the course with prednisone!

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