Pmr and noodle veins in hands

Posted , 10 users are following.

ive had pmr since september, 2016. currently im on the back half of my dsns taper to 5 mg pred for the second time. for about 2 years now, maybe longer, ive had giant bulging veins in my hands and wrists, very unsightly. my non-pmr girlfriends' hands look nothing like my ugly ones. two weeks ago i upped my pred to 8 mg for 3 days due to returning pain in my pelvic girdle area and then reduced it by 1/2 mg per day until i got back on my dsns journey to 5.

yesterday i noticed all the veins in my hands were normal! i mean they looked halfway decent. and they look almost normal today. im feeling a tad better too, which begs the question: do you think the pop up in pred cleared out some inflammation that had been building up? Ive increased the dosage before, but never noticed any difference at all in the veins in my hands. (of course theres always the pred head thought that my blood isnt flowing as well as it should and i will keel over at any moment. thank you, pred, for those disturbing thoughts.)

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11 Replies

  • Posted

    I suppose it could be sign of inflammation - you'd perhaps need to keep a diary because I don't think we are aware of things not being there, just when they appear. If you see what I mean!

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    • Posted

      Eileen,

      So sorry to bother you, but I have a problem with not receiving email

      from this Forum for the past 3 weeks. I am in Australia and was hoping maybe you could contact the moderator for me and explain my problem. I remember there were quite a few problems with the Forum a few weeks ago and I was reading about them from others, though thankfully I was immune from the problems until now.

      I cannot see where I can contact the moderator myself.

      thanking you, Track

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    • Posted

      You can always contact a moderator by clicking on the Report flag at the bottom left of any post - including your own. One option is "Feedback for moderator" if you have said what your problem is in the post or you can write what your problem is in the box under Other.

      One problem that seems to arise repeatedly is that an email notification from here accidentally gets marked as spam - and knowing my gmail and how easy it is to click spam rather than delete I bet most of the people with that problem also have gmail! Once you get it marked as spam it then sends everything else from here to spam - so check your spam folder regularly!

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  • Posted

    I found the veins in my arms and hands became very alarming when I was first diagnosed. But first of all I think they might have been like that for a while but I hadn't noticed when I was so ill with undiagnosed PMR. And also I have become very thin so there's not much flesh covering those veins so that's at least a factor in making them appear more prominent. I've not noticed a difference with varying pred dose, but keeping well hydrated may help.

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  • Posted

    My PMR occurred at the same time. I am at 7 mgs after a coupld of flares. Was at 6 mgs for over a year. Recently, I noticed my hands' huge veins in a hot bath. Googling swollen veins stated that heat could cause that. Also disease, not specified. Exercise of the wrist, hand and fingers can improve the circulation. Right now my veins are not large.

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  • Posted

    I had bad inflammation with the PMR but didn't have huge veins until i was on PREDNISONE about 6 weeks. I was on about 12 mg and frightened when looking at myself in the mirror. My veins were huge and ugly! I don't think my blood was flowing well either. The veins in my hands ached. I had lost a lot of weight which played into how i looked. I have now been on PRED 8 months and am now at 5 mg. i have recently been taking powered collagen, which really seems to help my PMR and inflammation. The last 2-3 weeks I forget I have PMR.

    My veins are no longer bulging and people no longer take notice. I will be continuing trying to reduce by DSNS method, but will not rush it

    as I dont want pmr to come back bad. I was happy because i had read once your veins are bulging they don't return to normal.. they can!!

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  • Posted

    Good for you! my veins were gone for a day when i posted this, but they are back to bulging now so my return to normalcy was short lived. however, that one day did give me hope that i can be ok one of these days.

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  • Posted

    I actually think my veins also still bulge slightly some days.

    But at least nothing like before when i was constantly self aware of how they appeared.

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