PMR 'Bad Day'
Posted , 6 users are following.
Today I think I'm having a bad day! Not a flare up, but just a bad day. A month into my diagnosis and a month on 20 mg pred, all my pain and awful stiffness is under control but today my muscles are aching and a bit of cramp in my calves, eyes are burning with dryness and I feel as if I'm going to have a cold!! Has anyone suffered the same when their main symptoms are under control, is this is what PMR is all about?? Some good days and some not so good days??
2 likes, 10 replies
EileenH andrea93419
Posted
Try getting some artificial tears from the chemist - dry eyes often come along with autoimmune disorders and there are several versions that will soothe your eyes. My favourite was a liposome spray called Clarymist I think - don't know if it is still available and it is expensive. You just spray it onto your closed eyelids. Others are more like gels and can make your eyes a bit smeary so use them at night. Your GP may even be kind enough to prescribe something for you.
And what were you doing yesterday or the day before? It is all too easy to forget and think "I'll just manage a bit more..." and then you hit a brick wall and realise what you have done a bit too late.
However - don't despair! As time goes on you have fewer such bad days - as long as you behave!
andrea93419 EileenH
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Oregonjohn-UK andrea93419
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Remember you will get better
andrea93419 Oregonjohn-UK
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jon02168 Oregonjohn-UK
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pat38625 andrea93419
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andrea93419 pat38625
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christine_fay andrea93419
Posted
it lasted 7 months and the work was hard! I thought I had cured myself by August and was down to 5 Preds a day. I was then told by Doc that I may as well come off. Lost my job and PMR stared to come back with a vengeance . Took 4 months and a wheelchair and some pretty strong words to get reinstated with
Preds again. During the worst times I had four days in bed for the first time in my life. It was the best thing I had done in a year so don't be afraid to take 'time out' from PMR and have a couple of days bed rest. Do all your reading and writing or thinking and forget any physical effort. My husband has PPMS so cannot look after me but I took a pump flask of water and a picnic cooler with sandwiches and fruit with me so was OK. Had I not done this a couple of times I would not have managed at all those four months. Now when I have a bad day I have a rest day after. I have also changed my sleeping times and go to bed at 8.30 pm most nights. Green vegetable powder in juice makes me sleep well. The longer you sleep the less you have bad days. The other wonderful thing that is happening after eighteen months is that the horrible psoriasis like spots on my upper arms are beginning to disappear at last. They don't hurt any more and have dried up suddenly.
andrea93419 christine_fay
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EileenH andrea93419
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