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PMR, Brain Fog

Posted , 11 users are following.

kathy67492
kathy67492

i am 20 months into PMR taking 8 mg daily...feeling "stable".

Problem is that After resting I only have so much social "energy", meaning that when I am in a group socially, especially at night, I become lethargic....I even wonder if my eyes glaze over....I have no energy to contribute to the conversation. Will that energy return when I am on the lowest dose of prednisone? 

1 like, 30 replies

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  • julian.
    julian. kathy67492

    Posted

    I'm down to 4mg/day, Between reduced pred level and exercise from coronary rehab which has returned a good level of fitness I have heaps of physical and mental energy. Most of the pred side effects had faded by 5mg/day, before coronary stuff but still low energy.
    • margaret84173
      margaret84173 julian.

      Posted

      Hi Julian, it's really heartening to hear you say the side effects fade at 5.  I will look forward to this!  This week, I became really determined, due to the last 4 months of exhaustion, to try build up some strength again, without doing too much and experiencing a flare.  So I think it's worked so far, though just 1 week so far.  Bi-daily, half hour brisk walk, daily if possible.  Bi-daily, 10 sit ups, 15 arm pulls, 15 arm pushes and 5 mins on the walking machine alternating fast/slow bursts.  I've also started ginseng as apparently it stimulates the adrenals. Plus nettle tea which provides faster uptake of vit c.  Will keep you all posted on if it works.  Also started herbal water tablets, which seem to be reducing my bloated face and tummy.  

      To Katy at 20mg, I had a strange mixture of frenzied energy levels as well as exhaustion, and the exhaustion has worsened when I got down between 9 to 7 where I currently am.  I agree it's the adrenals struggling to take back their job that might be the cause.  

      Keep up the good fight!

    • EileenH
      EileenH margaret84173

      Posted

      Don't be disappointed if they don't fade - everyone is different.

      Do be careful with ginseng along with prednisone - even herbal sites recommend care as it can affect blood sugar levels and make them rise. The same applies with the herbal water tablets.

      I know - I'm a miserable old git sometimes but it is all about being safe.

    • constance.de
      constance.de EileenH

      Posted

      Last paragraph!  And wouldn't we all be in a mess if you didn't put us in our places?
    • margaret84173
      margaret84173 EileenH

      Posted

      Hi Eileen, absolutely appreciate your feedback, and will monitor how it goes with ginseng and water tabs.  I've just had enough of feeling dominated by these awful drenching sweats day and night, exhaustion, bloating, weight gain, and feel  it's important to keep trying to not loose my old self completely by giving in. I'm keeping a daily lives g to chart any progress, so will let you all know how it goes. 

      To Kathy; my exhaustion did worsen when reducing, most noticeable from 9 and below.  At 20mg I recall I had muddled thinking and out of control emotionally.  Take good care of yourself to get through it. 

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