PMR confirmed

Posted , 12 users are following.

Hiya all. I was diagnosed with PMR last May but have changed doctors since then. 2 weeks ago my new doctor advised me to drop my dosage of preds down from 21mg to 10mg within 2 weeks so that he could test me for a skin allergy that had erupted a few weeks earlier when I dropped from 22mg to 21mg. He also advised me that in his opinion I did not have PMR as I also had severe pain in my legs originally and as far as he was concerned PMR did not affect legs. After dropping from 21mg to 15mg the first week I must admit that I did not feel that bad, just a few aches, however half way through week 2 and dropping 1mg a day the pain and aching joints slowly kicked in big time. By Sunday I was almost bed ridden until the remaining 10mg I was still on kicked in.

I saw my doctor yesterday expecting an argument but straight away he backed down, appologised and said that he had misread the notes on screen and accepted that PMR can affect the legs etc. He is allowing me to make the decisions as to pain management and my dosage and has suggested that he thinks the rash and itching is Hives as after I saw him last, he checked up and concluded that my rash was identical to the ones on the web that I had suggested. We are now at peace with eachother and working together and I see him in 4 weeks time. In the meantime I have up'd dosage to 15mg a day and hopefully things can settle down. The moral of this is, we are the ones in pain so do not give in to doctors that try and tell you differently and fight your corner. Good Luck

4 likes, 93 replies

93 Replies

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  • Posted

    tavidu -- Your doc misread the notes on screen!  He didn't know that the legs are commonly affected?  Nice that he was honest...but find another doctor.
    • Posted

      Ah yes - but this GP has been "broken in" now. He is unlikely to make silly mistakes about PMR again and has accepted the patients

      DOES have a clue and has said so. Major points scored.

    • Posted

      As you say Eileen, he has accepted that patients with PMR are in a better position to know the symptoms and is now aware of this forum. 3party is right in a way regards misreading notes but he has admitted his mistake.
  • Posted

    You may think he has been "broken in," but there are two criteria to be satisfied before we can be sure that he really is a doctor: (1) Does he speak to you only in Latin? (2) Does he make appointments for at least three patients at the same time?
    • Posted

      No latin, but he was amazed at my knowledge of PMR and that was the reason he asked about the website and not only for PMR. Regarding appointments for this particular practice he is excellent for appointments, the most I have had to wait beyond my appointment time is 5 mins.
  • Posted

    Ergo, (that's Latin) he is not a real doctor.
    • Posted

      vobis sunt pares non tuo iudicio
    • Posted

      Er - I have a real doctor in the house. DKHxxxxx, PhD, DrMedHabil - that's a doctorate obtained in 2 different languages. Neither Latin...
    • Posted

      All I have Eileen is a translation program, whether it translates what I say into latin I would’nt have a clue but its fun. Apart from that I am quite happy being a retired New Forest Commoner suffering from PMR and communicating with lovely people such as your good self.
    • Posted

      biggrinredface

      The only good reason for doing Latin is that it probably helps with German grammar. Cases and all that...

    • Posted

      Never been one for languages even my French is diabolical, apart from when I am furious over something then I think everyone understands my version of it. All to their own I suppose. May be in touch with you next week for advice regarding my dosage but will see how it goes at the weekend. All the best, Dave
  • Posted

    It was the young doctor who diagnosed me who told me to use this site.patient.info/He said that is the site Doctors use.So,he said,you are getting the best and most up to date information on the planet lol
  • Posted

    Olim agros vastabant Romanos.  Or similar.Its been a long long time. hahaha
    • Posted

      Sorry...I didn't see this.

      Do you have friends?

    • Posted

      Yes thanks 3party I have many friends, even though I live in a small village, do you?
    • Posted

      Ubi amici ibidem sunt opes

      Where there are friends, there are riches

      I used to have more friends...

    • Posted

      Dei amicis nostris benedicturus. Where would we be without our friends 3party
    • Posted

      Do you realise that we have accrued over 90 comments to this one discussion, mostly nothing to do with PMR, therefore I am going to unfollow so shall we finish this now, I will add you as a friend so that I have one more even though you are miles away.
    • Posted

      Good luck and all the very best, Dave

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