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PMR for 4 years and new face imflammation

Posted , 9 users are following.

connie28112
connie28112

I was diagnosed over 4 years ago with PMR, with no blood markers.  It took almost a year for diagnosis because bloods were always normal.  I have been on prednisone starting at 15mg, lowering over time, and no back up to 7 mg which seems to manage most inflammation.  I tried methotrexate in the hopes of reducing prednisone further but it did not work for me. I have been having an issue with periodic face redness and inflammation since February... every 3 to 5 weeks, my face spontaneously gets hot, red, itchy and inflamed... for a period of 2-4 days.  I use a cortisone cream, aloe vera, tea tree oil... and my dermatologist believes it is a part of my autoimmune issues, not a topical allergy.  I have been keeping a food diary but I'm unable to pinpoint a food trigger.  I know that sun is one of the triggers... but 80% of my eruptions have not involved sun exposure.  It is not a typical lupus/butterfly rash - it involved my ears, sides of my neck, forehead, cheeks. 

Does anyone have any information or ideas to share?

Thank-you in advance!!!

0 likes, 3 replies

3 Replies

  • mary19068
    mary19068 connie28112

    Posted

    Hi connie28112

    It sounds as if you may be getting a skin condition called 'Rosecea'.....check it online...

  • Harrie4
    Harrie4 connie28112

    Posted

    Hi Connie,

    Just off the cuff and I’m probably wrong but it might be worth checking: maybe the skin symptoms are a reaction to B vitamin. I forget whether it’s B6 or B12 but I can no longer eat nutritional yeast without a reaction like you describe. And I now have to take ‘cool’ B complex which is formulated to prevent that reaction.

    Just a thought....I hope things settle down for you soon!

    • connie28112
      connie28112 Harrie4

      Posted

      Thank-you so much Harrie.   I take B6/B12 supplements so I will check that out.
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