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PMR from a younger than average age and undiagnosed for years

Posted , 10 users are following.

greentea26
greentea26

Hi - as per the title I have had this undiagnosed for 5 or 6 years. Finally it hit me like a truck and I got diagnosis and medication just over a year ago. My experience is not unlike that of Eileen H who is an expert on this forum.

Anyway my exxperiences of coping have been a bit differnt to some - having had my family fairly late in life i still had a child at primary school as well as a job when i first got the condition!

That's just by way of introduction - my question at the moment is this. Having had the condition for years I now have the symptons under control but I know it is still very active - I am having to be super careful with tapering and have had a few set backs.

Is there a known link between age at onset and the amount of time it hangs around? Or perhaps a link between having the conditon untreated for a long time and the time it takes to go into remission or to get off steroids. I'd be interested both in any research anyone knows of and of course personal experiences.

Thanks for reading.

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  • sharon35553
    sharon35553 greentea26

    Posted

    Hi, I am not the one to know the answer to this  but I'm sure Eileen will. I wish you luck with the tapering.

    Sharon

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