If anyone has any further suggestions for inclusion do not reply to this but please contact me separately.
PMR-GCA NE can be found at www.pmr-gca-northeast.org.uk
PMRGCA-NW SUPPORT GROUP http://www.pmrgcasupport.co.uk/
The forums within the NE site are here - http://pmrandgca.myfunforum.org/index.php
New Book on the Block – “Living with PMR&GCA”.
‘Living with PMR & GCA’ written and produced by patients for patients has been issued to all members of PMR&GCAuk North East Support, Charity Reg No 1138409 May 2015.
The book is available to non-members and the details can be found by clicking on this link http://www.pmr-gca-northeast.org.uk/index.php?id=9.
Members of the PMR & GCA NE support group describe how the support group has had a positive impact in their lives and the lives of their families.
Other useful sites:
New steroid taper web application stores copies of steroid taper plans which can be viewed online or downloaded.
PMR-GCA Scotland www.pmrandgca.org.uk
PMR GCAuk - a National Organisation which covers England, Wales & Northern Ireland - www.pmrgcauk.com.
PMRGCAuk have a web-based community/forum on http://www.pmrgcauk.healthunlocked.com
Highly recommnded book - Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide' by Kate Gilbert
PMRUSA - Yahoo support group for USA/Canadian users.
http://www.rcpe.ac.uk/sites/default/files/quick.pdf (this is a paper by the Bristol group which is aimed at GPs to help them diagnose and treat PMR and GCA more confidently and using a scheme that results in fewer flares due to reducing the pred dose too fast or too far, which is the primary cause of flares).
2015 Recommendations for the Management of Polymyalgia Rheumatica - a EULAR/ACR collaboration
Study on Fatigue as a precursor to PMR
Diagnosis and Management of PMR - Concise Guidance from Royal College of Physicians
Update on the management of giant cell arteritis
Research and Guidelines
http://www.pmrandgca.org.uk/research-and-clinical-guidelines-0 This is a page with links to full articles on Research and Clinical Guidelines including A clinical review of Polymyalgia Rheumatica by BMJ and the BSR/BHPR Guidelines for the management of PMR and GCA.
Polymyalgia Rheumatica and Steroid Side Effects: New Findings
There are related tabs on all of the articles below where you can search for clinical trials. For example https://patient.info/health/polymyalgia-rheumatica-leaflet/clinical-trials
Patient information leaflets
PatientPlus articles aimed at doctors
Drug interaction checker
NHS hospital services
Specific topic discussions in these forums
Discussion for users achieving zero predisone:
Pacing in chronic illness - some useful links that explain it and how to do it