Edited , 77 users are following.
If anyone has any further suggestions for inclusion do not reply to this but please contact me separately.
PMRGCA-NW SUPPORT GROUP http://www.pmrgcasupport.co.uk/
PMR-GCA Scotland https://pmrgcascotland.com
PMR GCAuk - a National Organisation which covers England, Wales & Northern Ireland - www.pmrgcauk.com.
PMRGCAuk have a web-based community/forum on https://healthunlocked.com/pmrgcauk
New Book on the Block – “Living with PMR&GCA”.
‘Living with PMR & GCA’ written and produced by patients for patients has been issued to all members of PMR&GCAuk North East Support, Charity Reg No 1138409 May 2015.
The book is available to non-members and the details can be found here https://healthunlocked.com/pmrgcauk/posts/133359288/books-on-pmr-gca.
Highly recommended book - Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide by Kate Gilbert
Other useful information:
New steroid taper web application stores copies of steroid taper plans which can be viewed online or downloaded.
http://www.rcpe.ac.uk/sites/default/files/quick.pdf (this is a paper by the Bristol group which is aimed at GPs to help them diagnose and treat PMR and GCA more confidently and using a scheme that results in fewer flares due to reducing the pred dose too fast or too far, which is the primary cause of flares).
2015 Recommendations for the Management of Polymyalgia Rheumatica - a EULAR/ACR collaboration
Study on Fatigue as a precursor to PMR
Diagnosis and Management of PMR - Concise Guidance from Royal College of Physicians
Update on the management of giant cell arteritis
Patient-reported involvement of the eighth cranial nerve in giant cell arteritis
Polymyalgia Rheumatica and Steroid Side Effects: New Findings
Patient information leaflets
PatientPlus articles aimed at doctors
Drug interaction checker
NHS hospital services
Specific topic discussions in these forums
Discussion for users achieving zero predisone:
Pacing in chronic illness - some useful links that explain it and how to do it
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