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PMR OVER IN 3 MONTHS?

Posted , 12 users are following.

diana21296
diana21296

Hi Eileen, I took some mobility equipment back for a friend and there was a volunteer chap there with PMR whom I have seen before.  He said he was on a maintenance dose of 4mg after 4 years.   But he said he knew people with PMR who were off steroids within 3 months.   I said they couldn't have had PMR and he swore they had.   I didn't stay to argue with him as very self opinionated.    Have you every heard of that???

Another volunteer in Oxfam around 80 told me she had been diagnosed by her GP with PMR at some stage and she "had got over it on her own without steroids" looking at me in a very superior way.   All sounds very odd to me.

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  • missmagwumps
    missmagwumps diana21296

    Posted

    Wow - I do find some peoples attitude odd (especially those you mention Diana) it's not a race or competition and it's not big or clever to try and be superior, suspicious or judgemental....( and Harrie4 "SQUELCHERS" ha ha whatever can that be....do tell ...ha!)

    Do these people really think we want to take such serious medication like Steroids unnecessarily or for sympathy!

    I suffered for over 8 years before getting medics to differentiate between my spine facet joint problems and my arthritic knee....the NHS cogs move very slowly but, eventually, when spine was operated and total knee replaced 9 months ago the docs didn't have much choice but to further investigate and sent me to a rheumatologist in July as my symptons for PMR were Atypical - despite having elevated ESR and CRP which I had all the time at varying degrees and all those years my GP still didn't want to invetigate but this time I really had to insist as I had wasted so much of my life suffering with my mobility - putting my life on hold for years - and being over 70 I don't have too much time to waste - I want to get on before I really am too old to do things - ha.

    We are all so different and recover at our own speed as I leaned from my TKR recovery and the forum for that on this site was brilliant too.....

    I say Good luck to those that recovered from it unaided or at speed and would keep my own counsel with people that have an attitude to it all.....they will never understand in a million years - so don't waste your time and energy...

    I was sceptical with my diagnosis but would try anything at that point and the more I read the more I believe it to be true - albeit my symptoms are different to many others - so for fear of repeating myself no two people are the same...

    Keep strong everyone and keep up the good work and advice on here....x

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