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PMR, Prednisone, Increasd bone density!

Posted , 7 users are following.

kathy67492
kathy67492

2-1/2 years on prednisone...had my 2 yr. bone density test...

?Bone density has 'statistically, significantly increased by 3.3%'!!!

I had previously (before the test) decided against taking Actonel, a bone density medication recommend by m rheumy. I am surprised and relieved.

Slight osteopenia in the hips...same as two years ago.

A ray of sunshine in a storm??

1 like, 13 replies

13 Replies

  • FlipDover_Aust
    FlipDover_Aust kathy67492

    Posted

    Fantasitc news and a figerative sticking up of fingers to the Drs who insist we will crumble to pieces!
  • Anniecurd
    Anniecurd kathy67492

    Posted

    Great news! Gives us all hope without being on more drugs.
  • LayneTX
    LayneTX kathy67492

    Posted

    So good to hear!!! What are you doing? 

    Yes, sunshine, bliss, gratitude, love of life, ahhhhhhhh. Wonderful news. 

    • kathy67492
      kathy67492 LayneTX

      Posted

      By 'what are you doing'...I don't know. I have actually exercised less in the past 2-/2 years, obviously. I have always taken a calcium supplement...and then at some point added vitamin D and Vitamin D3. 

      Must be the vitamins, in addition to the almond milk in my morning shake...? I have the doctors written report, but have not seen him yet...will ask.

    • Mrs.Mac-Canada
      Mrs.Mac-Canada kathy67492

      Posted

      Good news!

      I recently had a DEXA scan and although there was a slight change from 6 years ago, pre Pred, I'm still at low risk(except they bumped me to moderate due to long term prednisone).  I haven't been taking calcium and Vit D3 on a regular basis but after reading your post will be more diligent.

      Thanks for posting and stay well!

       

    • kathy67492
      kathy67492 Mrs.Mac-Canada

      Posted

      The calcium and D is the only thing I can think of....I didn't think you could actually increase Ben density...I have been looking to maintaining density.

      Test was n the same DEXA, same hospital.

    • LayneTX
      LayneTX kathy67492

      Posted

      I've read different scanners can give different results. I hope that's not the case. 

      But forge on! I've read how truly seeing ourselves and believing ourselves healthy rewires our brain for healing. 

    • Anhaga
      Anhaga LayneTX

      Posted

      And even if it is different scanners, who's to say it isn't the better result which is correct anyway?

    • LayneTX
      LayneTX Anhaga

      Posted

      Anhaga, I totally agree! smile I'm telling myself my results was from the scanner that's NOT right Hee, Hee... Well, the one that gives "worse" numbers so to speak. 

      Plus I read one can show decreased density but still be strong. 

      So...believe...deeply...we are strong, we are strong, we are strong... 

      Laughing at myself, feel like being a cheerleader today. Rah, rah, rah. 

    • kathy67492
      kathy67492 Anhaga

      Posted

      It was the same scanner as two years ago...at the same hospital!
  • Anniecurd
    Anniecurd kathy67492

    Posted

    My doctor was not happy when I refused the bone drugs, she actually said that she was going to note on my chart that I was going against her recommendation. I guess in case I break a hip and then blame her. I hope my next Dexa is as good as yours, Kathy. Or I'll have to eat my words.

    • kathy67492
      kathy67492 Anniecurd

      Posted

      i need to email my rheumy right now and let him know that I will not be taking the Actonel. I assume he has, by now, seen my bone density report. At my last appointment, when he recommended the bone drug...before the bone test...he asked me to let hm know if I was not going to take it. Guess he will have it in writing!
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