Posted , 6 users are following.
does the PMR just disappear one day, or is it gradual? I imagine it is different for everyone, but can the PMR go away when you are still tapering the prednisone? How would you know? I am sure this has been discussed but I cannot find the thread. Does anyone remember being free of the PMR and the prednisone? Thank you for any input!
3 likes, 14 replies
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constance.de kathy67492
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margaret22251 constance.de
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constance.de margaret22251
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She was a typical (according to the experts!) PMR patient. You get it, you take pred, you reduce it, and it disappears after about 2 years!!!!
margaret22251 constance.de
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EileenH margaret22251
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Everyone has to reduce their pred slowly at some point. Once you have been on pred for some time you must reduce in steps because your body has become used to having it present and has to learn to make its own natural steroid cortisol again. You must NEVER just stop taking pred after you have been on it for a few months - you could make yourself very ill so always make sure you are not going to run out over a weekend or on holiday.
The reason we say to reduce so slowly though is less that fact than that it is only by reducing in such small steps that you can find the lowest dose which manages your symptoms - you want your symptoms relieved but you don't want to be taking more pred than you need
EileenH kathy67492
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A couple of ladies who are off or almost off pred say they woke up one day and felt different - and they never had another problem with reducing although they still went very slowly to avoid withdrawal problems.
" Does anyone remember being free of the PMR and the prednisone?" - do you mean pre-PMR? I remember life before PMR although it is over 10 years ago. I can still visualise the days when the symptoms started, when I found step classes harder and harder. Then 5 years of pain and stiffness before pred.
Oregonjohn-UK kathy67492
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linda17563 Oregonjohn-UK
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margaret22251 linda17563
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linda17563 margaret22251
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margaret22251 linda17563
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I was like that 2 days ago, talk abount panic but i am taking Eileens advice, what the doc will say on wednesday i don know, but i am not lowering just yet, my neck is swelling and the feeling in my head and temple keeps coming and going so i know its not time to reduce, i am sure i will be told by Eileen if im wrong. Have a lovely Easter, take care and try not to worry too much, we are all here for you.
Oregonjohn-UK linda17563
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linda17563 Oregonjohn-UK
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margo25238 kathy67492
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What a great question. I have this in the backk of my mind all the time. Especially, my symptoms of bloat and appetite, it really has gotten out of control and i am so looking forward to the day the PMR disappears! My pain/discomfort is all but gone, i am on 10mg pred;next week i drop it down to 9mg. I am looking for some hope that there is an end zone...