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PMR Relapse

Posted , 8 users are following.

ling42044
ling42044

Hi all

I've been on the forum before.  Just briefly, i was diagnosed with PMR 4 years ago.  Started with 30 mgs and managed to come down 2 mgs.  Had a flare up this January after a bout of flu and went back up to 10mgs.  I've just returend from a long hol to Tibet /China (3 weeks, very tiring and taxing!).  I was fine there until i got back.  2 days after i got home, i started to have pain on my left leg and then my shoulder feeling really heavy. I couldnt stand up for long nor walk for long distance.  I think this is a flare up?? But i've been on 10mgs for the last 3 months without incident.  Now I am at a loss whether to go back up my Pred to ? 12.5 or 15mg, then wean myself down again .   I took ibuprofen for a couple of days, but without much help.   I would appreciate your advice to ease me from this dreadful PMR pain, which never seem to go away, and come back at will!!! 

Thank you.

0 likes, 24 replies

24 Replies

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  • Michdonn
    Michdonn ling42044

    Posted

    Hi ling42044, I have not been on the forum that long. A year ago diagnosed with PMR, started 20 mg of Phed took about two weeks felt great. Reduced down 7 mg had a flare-up. 7 to 10 no help, 10 to 15 no help, 15 to 20 no help. I could not walk my wife rolled in the doctor office in a wheelchair. The Rheumy up to 30 mg, several weeks later I was able to walk without a cane. Now doing a very slowly taper, praying for no more flare-ups. See we are all very different. Hope that helps! Just got to keep smiling!
  • amkoffee
    amkoffee ling42044

    Posted

    Last month I was quite sick and the Dr put me on 3 days of 50 mg then 30 mg for 3 days. I'll tell you I never felt better pain wise. But when I went back down to 10mg I was in agony I tried raising my dose a little bit and still hurt. Now I am back at 15 mg and I'm better.

    • Michdonn
      Michdonn amkoffee

      Posted

      I wish my Rheumy had given me a large dose, instead of climbing me up to 30 a little bit at a time.
    • EileenH
      EileenH Michdonn

      Posted

      Climbing up slowly almost NEVER works. Far better to have a few days at a high dose and drop back fairly quickly if you can. 
    • Michdonn
      Michdonn EileenH

      Posted

      Yes, EileenH the climb from 7 to 30 was very painful, and now the slow taper. Next time a good bump for a few days and drop back down. I am still pain free and feeling great! Thanks again 😊

    • Anhaga
      Anhaga Michdonn

      Posted

      Michdonn, there may not be a "next time".  Look after yourself, go slowly and carry on with all the good things you already do for your health and perhaps things will go well for you from now on.  

    • Michdonn
      Michdonn Anhaga

      Posted

      I hope so, but who knows. I ready one way or the other. I am on this diet, health life style hoping for the best. Just smiling! 😊

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