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Pmr symptoms

Posted , 10 users are following.

TIsser
TIsser

I was diagnosed with PMR last July, I originally thought I had strained my arms or suffered from stiffness due to old age I am 72. One day I could not get out of bed or even get dressed I could not even get my foot up to the door step, the pain and stiffness got progressively worse.  I was given 8x5ml pred which made a huge difference and I felt really much better and could move with ease. I am now taking 10ml which keeps my fairly even, unless I do too much then the next day I am suffering with stiffness of the limbs. Taking a naproxon tablet sorts me out, and unless I over do it I keep fine. I guess I am luckier than a lot of people who seem to have awful symptoms. I hope that eventually I will recover.  Reading the forum has given me answers to my questions, and it us good to hear other peoples stories. Unless you suffer from PMR you just don't know how it effects your life. 

3 likes, 17 replies

17 Replies

  • tina-uk_cwall
    tina-uk_cwall TIsser

    Posted

    Hello tlsser, welcome. It's always good the hear fellow sufferers story's. Now that you've joined the club don't be shy and join in with the posts. Good luck with your recovery journey. Regards, Christina 
    • TIsser
      TIsser tina-uk_cwall

      Posted

      Thank you for you kind welcome, it's nice to be able to discuss PMR with people who understand.  Regards 
  • pauline36422
    pauline36422 TIsser

    Posted

    too true tisser, i too am  thankfull for  not being as  bad  as some of my  friends on this forum,   realy feel sorry for  the ones who cannot seem to get the  better of this awfull   problem,   i dread to  think it will never go away,   but i also forget i am  3.5 years older than when i first  started    with it.    and some of the discomfort i have  could be old age at  73
    • TIsser
      TIsser pauline36422

      Posted

      Lovely to meet you on the forum, keep well and don't forget age is just a number.  Regards Tisser

       

    • helenemiles
      helenemiles TIsser

      Posted

      Welcome Tlsser 

      I too am very knew to this forum and have been very comforted by the advice and information given by members of the group . it's lovely to hear your positivity smile

      helene

  • andrea93419
    andrea93419 TIsser

    Posted

    Hello Tlsser,,, it's nice to hear from someone who has reduced medication fairly quickly to a low level without too many problems! It gives me hope and comfort as I hope my rheumatologist will start to taper me tomorrow! Thanks for your positivity! I need it xx
    • TIsser
      TIsser andrea93419

      Posted

      I spoke to my physician last week, she decided to keep me on my current 10ml for at least two more  months. Hope your meds go well and you manage to get yours reduced.  Regards 
  • djwillms
    djwillms TIsser

    Posted

    Welcome.  I am also new to the forum and have already learned a lot.  I hope you continue to manage symptoms well and continue to improve.
  • ptolemy
    ptolemy TIsser

    Posted

    Tisser I am just so impressed with how well you have reduced the dosage of pred. Much better than me! One thing I have heard that NSAIDs such as Naproxen do not mix well with pred and should be avoided if possible. I don't know if your doctor suggested mixing the two? 
    • TIsser
      TIsser ptolemy

      Posted

      Ptolemy... I have not found any problems taking naproxon ... I make sure I take omeprazole in the am. I have had long time problems with one of my ankles and find that sometimes naproxon reduces the discomfort for that also. I am aware of what pills I take and must confess I am not a habitual pill taker, in fact befor PMR I was not on any regular pills.  Hope you continue to improve.  The Doctor was happy about my taking Naproxon she does ring me on a regular basis to check how I am doing. 
    • ptolemy
      ptolemy TIsser

      Posted

      Tisser that sounds fine, it looks like you have a caring doctor. 
  • erika59785
    erika59785 TIsser

    Posted

    Yes, you are right --- unless you suffer from PMR you just don't know how it effects your life.  It is miserable when one has so much pain and cannot get out of bed.  It happened to me recently.  It made me cry!  I was given 40 mg of Prednisone for thee days which helped. This was 3 weeks ago.  Now I must carefully taper down 1 mg a month from 20 mg. 

    Good luck to you - I feel for you!

    • TIsser
      TIsser erika59785

      Posted

      Gosh Erika I can sympathise, I could not even get up or sit down on a chair. I felt 90.... Thought I would never feel well again.Continue to get better good luck.  
    • erika59785
      erika59785 TIsser

      Posted

      After 3 weeks of the last most painful flare I have ever experienced.  I am finally starting to feel better, and I walk better with less pain in the middle of my back.  There is HOPE!

      Thank you for your caring message. 

  • pat38625
    pat38625 TIsser

    Posted

    Good Morning Tisser, I recently just turned 60 and the symptoms you describe are exactly the way I was.  Couldn't get out of bed, into bed, into the shower, out of the shower.  It took me two and a half hours for an 8 minute car ride to see my dr.  I will never ever forget that type of pain.  I started at 20mg pred on 14th November and have reduced today to 12.5 and I hope and pray that I have no flare up.  Please keep in touch and let us all know how you are getting on.  Good luck on your journey.  Regards Pat

     

    • TIsser
      TIsser pat38625

      Posted

      Thank you Pat hope that all goes well, and your reduction also goes ok.

      Do you get any side effects from pred? I find that I get very hot on occasions and my face goes a bit red, I did  have problems sleeping on the higher dose I had to start with, but find I can sleep better these days.

      i have managed to keep my weight stable, as my Dr warned me that your appetite increases..... Other than that I keep reasonably well, apart from the occasional flare up if I do too much. Take care

    • pat38625
      pat38625 TIsser

      Posted

      Hi Tisser, Yes I do get side effects.  One is yes I get very hot, it's like my own built in thermastat.  I remember it was -9 below freezing in Belfast, Northern Ireland and I was nearly going to sleep on top of the bedclothes as I was so hot.  Also my face would redden and still does.  Also my Dr. said it would increase my appetite (which it hasn't).  I have put on a bit of weight but not that much, yet my face is very full which I put down to steroids.  I have about 3 chins.  I haven't had a flare (not yet) so taday is my first day going from 15mg to 12.5mg  I have a sore throat but I don't know if it's connected.  Yes I had problems sleeping at the beginning of my pred journey but now I am ok most nights.  Take Care  Regards Pat
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