Pmr wins again!
Posted , 11 users are following.
On wednesday i had a bump biopsied on my right lateral forehead. after the procedure, my right eye and forehead drooped (from the lidocaine)--looked awful. 2 hours later i called the dermatologist who said if not better in 6 hours, go to er. it got better in 5 hours,
the next day i was shot--stiff and sore everywhere, just couldnt move, felt awful all over. a big pmr reaction to the whole ordeal, i guess.
yesterday nurse called to say the bump was basal cell c; i have to have a procedure where they scrape some off, then do lab test for couple hours, then scrape more, etc. can take all day. and more lidocaine, a lot more, of course. she said my eye will likely droop again, that it can last up to several months in some people, etc.
i was obviously shaken by the first procedure that resulted in my eye and drooping forehead, and will probably be a lot more shaken by the next procedure that isnt scheduled yet. so heres one question: do i increase the pred just before the procedure? Im currently on 6 mg. if so, by how much and how long? my gp has said in the past that pred makes things bleed, so dont increase if you are going to bleed---which the procedure will cause, at least a little. the doc said the skin is very thin where my bump is . but im thinking of my reaction this past week and how bad i felt the next day.
next question: i didnt think i was that traumatized by the first biopsy--i was shaken by the whole drooping eye thing but didnt expect to be flattened and in pain a day later. so am i nuts, do you think? thank you.
0 likes, 29 replies
margaret22251 Twopies
Posted
No are not nuts, sorry to hear you are having a awful time, some body will come along and give more advice, best wishes
Twopies margaret22251
Posted
thank you--i read your posts and know what a tough time you are having. good we have this forum for advice and support!
EileenH Twopies
Posted
I just had a pacemaker fitted - and everything hurt everywhere for a few days (not helped by the return journey to our local hospital with a racing driver wannabee ambulance driver - I gave him what for!). I was already at 15mg - but have reduced to 12mg in the few weeks since without any problems at all. So no, I don't think you are nuts and I would expect the anaesthetist supervisor for the second procedure to take long term pred into consideration. Generally the suggestion for patients with compromised adrenal function for sick days is to double the dose - and you would come under that heading I'd have thought. But they are the people to ask. And I don't bleed particularly more on pred.
Twopies EileenH
Posted
What a journey youve been on! ok, ill ask re dosage uppage recommendation when they call for the appointment. good idea.
Elijo EileenH
Posted
I've had several Mohs surgeries on my nose and all did well, you can't even notice anything. So good luck to Twopies. I'm sure it will go just fine! To Eileen: I hope you are doing well with your pacemaker. I just got one installed on May 1; prior it was a difficult journey for me since I was scheduled for a Watchman device on 4/29, supposedly an overnight procedure. The MD tried twice to get it in, on 3rd try it got stuck, he had to call in a thoracic cardiopulmanary surgeon (while I was on the operating table, already anesthetized.) He got the Watchman out (along with a little heart tissue), put in an atroclip to close right heart appendage, and a chest tube, Two days later they installed the pacemaker (very light anesthesia, I was awake during the procedure) In the interim after the first procedure, I developed serious problems and am lucky to be here! I ended up in ICU for 5 days, and 5 more days on the cardiac floor, I had to have PT and nursing care at home after this since I became very weak after being hospitalized for 10 days. I've had minimal pacemaker discomfort, and am sorry you had so much discomfort after yours, Eileen. I've had my pacemaker adjusted twice and another due in 3 months.
Twopies Elijo
Posted
Oh my gosh, elijo, now i feel like a whiny little rat after reading what you have been through. sending good thoughts your way!
Michdonn EileenH
Posted
Eileenh, sorry to hear of another speed bump on your PMR journey. I am recovering from anesthesia durning a 2 1/2 hour colonoscopy and endoscope. I guess we all have speed bumps along the way. Get well soon! We have to stay positive and active, hey you taught me that! With a 🙂
missmagwumps Michdonn
Posted
ooh - I am scheduled for colonoscopy on 9th July...not sure what to expect but hoping its not too grim....how was your experience.....? x
Elijo Twopies
Posted
Thanks! When we are going through a problem, it is always a worry to us, no matter how big or small. Best of luck to you!
Michdonn missmagwumps
Posted
Hi missmagwamp, not good I was under anesthesia, too long, a couple of hours for normally less than one hour procedure. They had to rough me up to complete the procedure and I try feel the results. Couple days later and I was okay. Hopefully you will have an easier time of it. I did NOT increase my Prednisone. Good luck think positive with a smile. 🙂
EileenH Elijo
Posted
I'm still waiting for my first adjustment!! We get nothing but local anaesthesia - but that is Italy!! However, although I was in hospital for 10 days I was able to get up though not do much as I was tethered to the ECG machine, no ICU for me, and no really bad problems. Thank goodness! But it seems to be working well - none of the episodes I'd been having despite a lot less pred, BP is good and I'm on far less medication which is a joy.
EileenH Michdonn
Posted
Thought you'd been quiet!!!
No anaesthesia here for a colonoscopy but they don't usually last that long! Never had an endoscopy - hope I never need one! Hope they found nothing and get well soon.
Michdonn EileenH
Posted
Thanks Eileenh, they took a couple of biopsies no calls so I guess they did not find anything. I working on my balance and getting stronger, plus house training a couple of puppies, that keeping me busy. Thanks for encouraging words. 🙂
missmagwumps Michdonn
Posted
oh dear - i am not scheduled for any anaesthesia.....just sedation if i need it but that wont be possible as i have no one to collect me but hopefully it will be ok.....x
Elijo missmagwumps
Posted
When I had my Mohs surgeries I had no sedation or anesthesia, only several local injections around the site. The first one "stings" a little, don't feel the others after that. Good luck!