PMR with joint pain in hands
Posted , 18 users are following.
Decreasing prednisone for PMR
experiencing joint pain in hands and fingers
has anyone experienced this.....the pain is mostly upon awaking and decreases with use of hands
thx
0 likes, 34 replies
andypolly nancy15228
Posted
Hi Everyone,
About 8 weeks ago I had swollen knuckles which were very painful early in the morning. The pain and swelling subsided during the day and there was no pain by night-time. In the morning i could not close my fists. I went to my GP who said it might be Rheumatoid Arthritis (RA). These are indeed classic symptoms. The blood test were negative for both markers which happens in 25% of RA cases. I upped my pred from7 to 9 and the swelling has gone, but there is slight pain in the morning. I only mention this because these symptom might be RA and maybe you should check with your doctor and get your bloods tested for RA markers. I'm hoping I don't have it!
jean39702 nancy15228
Posted
I get this on occasion. No rhyme nor reason, although I haven't 'analyzed' the cause in terms of something I did the previous day, It may be that I overworked my hands the day before. It appears one day and disappears a day or two later, I would describe it as stiffness in my hands when rising which lessens throughout the day,
brian75018 jean39702
Posted
brian75018 nancy15228
Posted
Hi Nancy, I have had PMR for about 1 1/2 years and just alter the dose as I feel like it I quickly went down from 15mg to about 5mg and have more slowly got down to a very low amount, sometimes 1mg sometimes 1/2mg and recently for 4 days none.However it has started to come back,i.e.the stiffness etc and only recently it has effected my hands as you say especially at night and in particular the small finger on my right hand which gets better during the day but is always a little bit stiff and painful if I stretch it.I am only on 1/2 mg at moment and don't want to up the dose if I can avoid it.I seem to get odd pains or aches in lots of different places at different times, it's all rather odd.
nancy15228 brian75018
Posted
but my hair is falling out, bruises everywhere, veins popping out, losing weight, can’t gain muscles with working out, high blood pressure, now high cholesterol, bone lose bla bla!!! Sorry just venting
Michdonn nancy15228
Posted
amkoffee nancy15228
Posted
My hands hurt all the time. Here is what is wrong with mine. Maybe you fit one or more of these.
PMR
osteoarthritis
rheumatoid arthritis (possibly)
trigger thumb
carpel tunnel sydrom
I just got the trigger thumb and carpel tunnel fixed in my right hand and will get the left hand done at the end of summer. I am taking an arthritis med for the rheumatoid arthritis and I recently started to taper off and my pain returned so I'm back on that again. And if I'm late taking my pred in the morning then the first place I feel pain is my hands and forearms.
EileenH nancy15228
Posted
I had severe hand pain before diagnosis that then slowly faded with 15mg pred. It was mostly tendonitis in my fingers and although there was some synovitis I wouldn't have said it was joint pain. I also had tendonitis that stretched from the outer aspect of my elbow to the inside of the wrist - we thought it was RSI due to too much typing! I also had foot pain.
stevep63 nancy15228
Posted
Hi Nancy. I experience the same thing and mainly in my Right hand and wrist. It's not painful really, just stiffness and weakness. It's difficult to make a fist initially, but all improves once I get moving. My rheumatologist says it's possibly early onset RA, but all sets of tests have been negative for that so far. I don't have any swelling so don't believe it is RA. She says that PMR does not affect the hands or feet, however a recent large study by the Mayo clinic says otherwise if I remember correctly.
amkoffee stevep63
Posted
My rheumatologist says that it can affect the hands, arms and even the thighs but she didn't feel like it would affect the feet. I think it would behoove you and be good for your doctor if you were to find that article and send it to him or her. I'm sure if you have a busy practice it would also be hard to keep up with the latest information.
EileenH stevep63
Posted
nancy15228 stevep63
Posted
i am a mess in this crap