POEM Surgery
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Hi, its been 14 months since i have had my POEM surgery and have been very happy with the results. Is there anyone who has had it done longer than 2 to 5 days. I am curious to know if they had to repeat the surgery or do they contiue to be ok.
1 like, 97 replies
Robert13450 wendy83249
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Craig2017 wendy83249
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Robert13450 Craig2017
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Hey Craig, like you said every doctor is different. My first surgery the doctor had me on clear liquids for 2 weeks then full liquids for 2 weeks the soft foods for 2 weeks then slowly add in regular foods after that. My clips , which I had 6 stayed in for about 3 weeks but I've heard of them staying longer. I don't think softbfoods would do anything but 5 days out might be pushing it a bit. I would ask your doctor. The clips are usually on there pretty good so I wouldn't worry too much
Craig2017 Robert13450
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Robert13450 Craig2017
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Craig, I had terrible heartburn. Worse than before. The chest pains stopped but the acid was burning the hell out of my throat and even vocal cords. Got so bad I had a new procedure to try and help but that made it even worse.
Best advice I can give you for the acid at least for now is to eat your heavy meal mid day and have a very light dinner and no food at all at least 5 hrs before you rest your head on your pillow. I would go as far as to google some foods that are the least acidic and if you can try to start with them . Dude I've been right where you are. I know they are going to tell you that you need a full fundoplication my spelling is horrible but I think you'll know what I mean. Let your esophagus heal before rushing into anything.
One thing I do that sometimes helps in the middle of the acid burning my chest and throat is I chew 3-4 tums and drink about a quart to a half gallon of milk and slowly it lightens up enough to be able to function. I don't know what meds they have you on if any but I'm on some strong stuff and it does nothing.
Doctors all over the country are quickly learning how to do these poem procedures and literally pushing them down peoples throats like it's a cure ! That's BS ! They are leaving the opening from your stomach to your esophagus wide open for visitors. If I were you I would write down questions and question everything from this point forward. It's your right to know what's going on. After my last surgery I went in with 22 questions typed up , I thought his head was to explode. Hey man, good luck and if you wanna talk we'll figure out a way to get our numbers to each other . Later feel good
Dax49 Robert13450
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Hey Robert
I had a heller about 20 years ago. Some symptoms of A are coming back. I have some acid issues and found milk to initially help but some time later the dairy couses more acid production and makes it worse. I've had pretty good results when I went organic and limited foods with chemicals in them, read ingredients. And cut out all dairy. Give it a try
shehnaz5 wendy83249
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Hi
I had my poem surgery in March 10th 2017.
I couldn't go for review due to personal prob...
Its strange I still feel pain n difficulty in swallowing
Food.
Since last month I am getting hiccups in night.
No matter how much water I drink I still have them..
I tried chicken next morning I vomited.
Not able to eat non veg.
I wanted to know if anyone else experienced
Similar problem even after 3 months of surgery?
Thanks
Shehnaz
fay01199 shehnaz5
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Hi Shehnaz,
So sorry to hear you are still in pain. I can definitely relate to what you are going through. I had POEM surgery on 10/3/2016. The surgery allowed me to swallow; However it did nothing for the spasms and I could not eat anything and keep it down. The surgery for me did not work and I continued to throw up all food. My doctor put me on IV hydration support for 1 mos, this helped but I lost 30lbs so another surgeon was called in for testing and surgical evaluation. I had a partial Nissan fundiplication on 3/6/2017. I no longer bring up my food; However, my digestion is very slow and I can't eat meat of any kind, plus I can no longer drink any kind of carbonated beverages. My surgeon made it very clear to me that I may require another surgery since he is only treating the symptoms as they appear.
Also, I too have recently started having hiccups after drinking water, tea or coffee. I pray this is not a bad sign that I am about to experience further symptoms of this awful condition.
I hope this info helped answer some of your questions.
Regards,
Fay
shehnaz5 fay01199
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Hey Fay,
Sorry to hear you had to go through so much...
I have hiccups in night n burps too...
I m not able to sleep properly.
And did you feel any pain @ time of bending or lifting weights.
I have kids n younger one is 3 years old I hve to carry him at times n believe me
I get very bad chest pain.
One more thing I experienced if I speak little loud or the day I talk more my throat
Starts paining badly infact pain stays for 24 hours..I have to take painkillers to reduce pain.
Does anyone else experience same?
d69818 shehnaz5
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Sorry to hear that the Poem didn't work for you Shehnaz, I'm just wondering what your surgeon is saying at this point. Hope by consulting more, you'll find a better follow up treatment that works wonders for your condition. May I ask where did you have your POEM done at?
Robert13450 d69818
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Hi Shehnaz5, I had my POEM done at NYU Medical Center in Manhattan. The surgeon lied to me when I asked how many he had done , he told me 65 when he had only done maybe twenty. It took him a little over 3 hrs to remove it and only took out 90%. When I woke up my blood pressure was 265/170 and they kept saying that was normal after surgery. I laughed and said Do you think this is my first surgery? If that's true why are you giving me injections every 15 minutes to bring it down. Anyway, I had all kinds of issues after so I saw a different doctor that bragged about this new procedure he was doing and could fix me right up. So I made the mistake of trusting yet another doctor. I'm worse now than I ever was. So now I'm seeing my 3rd surgeon on Wednesday to talk about a full wrap but I'm not rushing into anything again. He has to earn my trust and if anything seems off then he's done and I'll keep looking. I'm so angry that I was misdiagnosed for over 6 years and now that I know what I have I can't find a doctor that cares about making me better instead of his wallet fatter! My story is a long one so I won't bore you with all the details but I appreciate your well wishes. Oh, my 2nd surgery was done at Winthrop Hospital in Mineola, NY. Thanks again , feel good
Dax49 Robert13450
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shehnaz5 d69818
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My poem was done at Asian institute of gastroenterologist by Dr Santosh and Dr Nageshwar reddy.
They have done endoscopy results are good...Manumentry is pending.
Robert13450 Dax49
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Hey Dax thanks, I'll try it but my acid levels are so high don't know if it will help. Anything is better than letting a doctor experiment with your body. Thanks
abigail66654 wendy83249
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I hope you continue to have great results. I am in waiting place because right now I do not have health insurance and so I cannot continue treatment without racking up bills I can’t afford to pay.
wendy27488 abigail66654
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Hi! I had my surgery December, 2017. I have had food starting to lodge again in the past three weeks. I eat slowly. I am trying to be very careful, as I don't want the peodess to start all over again. I too, am having trouble to lose weight, as I would think this would be easy when there are times I can't finish my meals. So frustrating!
wendy27488
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