Polio left leg

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I have had polio left leg and hip, total paralysis, for many yrs, got it at age 2, now am 61. Wear kafo, long leg brace and use crutches to ambulate. Always been active until recently, pain in left hip. Cant seem to walk much at all now without pain. Does anyone know of a doctor in Florida that has extensive knowledge with polio patients?

I think the pain is from extensive use all these years. Had an xray done with ortho doc, he suggested minor arthritis beginning.. have tried aleve but doesnt seem to help.

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2 Replies

  • Posted

    Hi Karen,

    You are right, the pain is probably from extensive use for so many years. If you read a few post's from others, there is one that said that our thirty year warranty ran out. I feel like although I had some pain my entire life, it got much worse at or near the 30 year mark. I couldn't function much at all so after 30 or more years of nothing stronger than Tylenol, I had to join pain clinic. It took awhile to get the right level of meds so I wasn't really messed up but finally got it right so now I can tolerate what pain I have. I'm in California so can't help find Dr in Florida. It seems that as more time passes the less doctors u can find that know a lot about polio. Check hospitals to see if they have any research about polio. Good luck

  • Posted

    Hello Karen,

    I cannot help you about Florida doctors, but I know how difficult it is to find one here with any knowledge of polio and PPS, post polio syndrome which many of us now live with.  My @good@ leg now also has arthritis from all the extra use.  I took a huge amount of painkillers, until my doctor gave me pregabalin - it has really helped aleviate pain so much, I find it quite wonderful - maybe your usual doctor would prescribe it for you.  We will try anything (almost) to help - pain just wears you out and makes one so tired as well.

    My very best wishes to you,  Marion x

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