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Post Polio Syndrome

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  • Back pain

    Hello fello pps suffers. I am curious to how many of you suffer from lower back pain . Ive had it for about 17 years. Im dreading the cold weather coming . I know that people from all different countries use this forum . So will be interesting in the feed back . Have a good week ahead . Dee 

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  • Pps

    I am 66 . I initially was affected with right arm and left hand.i was told by my parents that I was totally paralized and near to death . I have been going down hill from the age of 50 . It’s only in recent years I have learnt about pps through a polio charity. My doctor had never heard of it .i ve …

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  • Pps

    sorry about word mistakes . I’m sure these tablets have a mind of their own . ( computer )

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  • Is it always as quiet in here???

    I joined this group last night (Friday 27/7/18)....but there has been absolutely no sign of life....or have I just picked a bad time??? I would love to get to know some like minded folk....and other PPS sufferers....

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  • Me and Polio........and then PPS

    Hello all......I took Polio at 11wks of age in 1954, in a wee town in Scotland.   I was affected from the neck down.....its still hard to lift my neck!    After all the necessary ops on my back and legs finally I was left with a caliper on right leg and a walking stick!   …

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  • kafo design

    Although I have not had polio I have joined the PPS group because of a chance meeting with a man in a pub. Like me he wears a caliper, in his case he had polio as a child. ​For both of us this was the first time we had talked to another kafo user. ​Am I in the right group or is there another one I …

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  • Polio left leg

    I have had polio left leg and hip, total paralysis, for many yrs, got it at age 2, now am 61. Wear kafo, long leg brace and use crutches to ambulate. Always been active until recently, pain in left hip. Cant seem to walk much at all now without pain. Does anyone know of a doctor in Florida that …

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  • done

    I have been dealing with post for many years and now I have to be honest, I'm done.sure I have other issues but pps has gotten worse each year. The first 40 years of my life I never took anything for the pain during the work day of after work. Hot bath and massage that's it. Those don't …

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  • Total Knee Replacement

    Hi I am due to have TKR done in April, For the last 3 years I have been diagnosed with PPS. One Neuro Dr advised me not to have it done, The other Dr said it will be fine. Had Hip Replacement done 2 years ago, I am pain free, but I am very weak on my Hip. I really don't know whether to haveTKR …

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  • Had polio when i was 7. I'm 75 now

    My muscles were dead in my left leg.nothng helped..over the last couple years my left foot is turning out.. a Dr suggested i. Have a rod inserted in the bone..kind of afraid of that..anyone having this problem. ?

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  • Can muscle be rebuilt in a polio affected area/limb?

    My mother suffered polio at around the age of 3 and has in recent years been increasingly affected by post polio syndrome. Thankfully she was relatively unharmed by the virus but it left her with a severely underdeveloped left leg. I think I understand that polio attacks the nervous system and this …

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  • Bewildered

    I had polio when I was 18mths old , now in 64 and the last few years have been really bewildering . My muscle strength in my arms has changed ,my affected leg has gone so weak. Last night I was shopping and I thought I would not make it around the shop. After a good rest I was so much better , but …

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  • Post Polio Syndrome

    I contracted polio at the age of 12 months during the 1947 outbreak in the UK.  At the time my legs were affected as well as my left arm.  The legs recovered but I have grown up with no deltoid and biceps muscles and a restricted use of the arm.  I have always maintained that, if I …

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  • Polio

    I've experienced increased tiredness and fatigue. Are these onset symptom is pps?

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  • Hip drop

    I am a polio survivor which primarily affected my left leg and hip. Muscle wasting and atrophy is extensive in the affected area. I am 66 years old and contracted the disease at 3. I am currently experiencing hip pain probably from overuse, but I have had this condition when I was in my 20s from …

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  • Amputation

    i had polio at 10 months old in 1952 left my left leg paralysed no muscle movement. A year ago I had total knee replacement which has been a nightmare left with crutches can't bent my leg properly or put my heel down. Been told to either stay like I am or have my leg amputated. Just wondered …

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  • Polio treatment

    I contracted polio at the age of three in Africa. Now, I live in the U.S and would like to know if there is any medical(surgical) solution to heal my right leg? Thank you in advance!

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  • Collateral Damage

    I haven't seen anyone mention the effect of childhood polio in one limb on the other limb. My left leg is 4cm shorter and weaker by far than its partner, which has suffered from overwork for 70 years. This has not stopped me in the past from living an active life, but has now given me chronic …

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  • post polio and PIP

    hi anyone out there been refused PIP but have post polio syndrome.  I have just had to apply for PIP and wonder if anyone with polio has had their PIP refused.

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  • Sunday TV

    Hello Polio survivors, On Sunday Dan Snow is appealing on behalf of polio.  The programme is Lifeline - thought you might like to watch.  I think it is just before "Songs of Praise" Marion 

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  • pip

    Hi can anyone tell me if anybody gets any pip benefits with having polio and post polio syndrome 

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  • PPS and the brain

    Hello all, I had polio at  18 months, diagnosed PPS at 50, when I had to give up working as I could not go up stairs or walk very far.  Now I am 73 and find my brain is slower as well as my body!  Does anyone else find difficulty concentrating?  Maybe this is just the aging …

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  • Dizzy spells and faint feeling

    Could someone try and give me some answers I'm suffering a very bad condition and it's interfering with my whole life it's making me house bound I'm suffering a very bad case of dizzy spells and faint feeling and a lost balance like I'm going to fall over I shake with it to it …

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  • How to get help with saving my strength, etc.

    i had a mild case of polio in 1955. My family was told there'd be no aftereffects, but a medical exam 10 years ago confirmed the sense I've always had that I had some damage in my upper back. Around that time I started experiencing fatigue which is now getting worse. I'm 70. My doctors …

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  • Stemcell therapy

    I am 46 years old and had a polio when i was 8-months old. My left leg is affected slightly but as I am aging - it's giving me lots of trouble. Left knee and hip joints have been going weaker inspite of my excersize. I am wondering if anyone here has tried stem cell therapy to strenthen the …

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  • Post polio syndrome

    Contracted polio at age 4/5 months old in 1955. Recovered except for right leg/hip however have led a normal and active life, including bearing 2 sons, until I was involved in a road accident in 1984 which resulted in the amputation (below-knee), of my right leg. Recovered from that and became …

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  • Two years ago my husband started loosing muscel use. He ...

    Two years ago my husband started loosing muscel use. He never had polio. His left arm is useless. I can not find out anything about it. He had a major heart attact 10 years ago. One year ago his left leg started to go the same way. He had many test and did not suffer a stroke. His right arm is …

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  • Post Polio Syndrome

    I was 26 years old in 1947 when I contracted this disease. Initially I was almost totally paralysed from head to foot and I spent 6 months as in in-patient in UCH in London. Many more months were spent doing intensive hydro and physiotherapy. I was very fortunate to be able to lead a pretty ' …

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  • I contracted polio @ the age of 14months I am now 49.It ...

    I contracted polio @ the age of 14months I am now 49.It affected my left leg and for a time I wore callipers still it has never stopped me doing anything except for skiing!I recently was lucky enough to be referred to a consultant at Oswestry who examined me and confirmed that I had pps,he also …

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  • iT WAS JUST AFTER MY 30TH BIRTHDAY THAT I NOTICED A WEAK...

    iT WAS JUST AFTER MY 30TH BIRTHDAY THAT I NOTICED A WEAKNESS IN MY RIGHT ARM WHICH WAS TREATED AS A NERVE TRAPPED IN MY NECK A OPERATION WAS PERFORMED BUT NO REAL IMPROVEMENT WAS GAINED THEN MY LEFT ARM BECAME WEAK A SECONED OP WAS PERFORMED AGAIN NO IMPROVEMENT SINCE THEN I HAVE HAD BREATHING …

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  • I am 73 years old. I contracted polio in 1947,at the age...

    I am 73 years old. I contracted polio in 1947,at the age of 14, total paralysis in both legs and stomach muscles. No respiratory or upper body effects.I spent a year in hospital, and made a significant recovery. My left leg recovered about 70%, my right about 40%. Quadraceps were the worst affected …

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  • My sister and I used to play tennis, and one hot summer ...

    My sister and I used to play tennis, and one hot summer day in 1954 we had played about an hour when suddenly my knees buckled and I fell while chasing a ball that she hit to me. I knelt for a moment and when I tried to get up by leaning on my racket, both legs collapsed in front of me. My sister …

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