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Post polio syndrome

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jan1955
jan1955

Contracted polio at age 4/5 months old in 1955. Recovered except for right leg/hip however have led a normal and active life, including bearing 2 sons, until I was involved in a road accident in 1984 which resulted in the amputation (below-knee), of my right leg. Recovered from that and became fully mobile again after some months. Carried on working and bringing up my sons for the next 25 years. However during the last 2/3 years started feeling very tired and right leg became substantially more weak to the point where I have lost confidence in its ability to support my body weight. Incidentally, I am currently 49 kilos so not much to support! In addition, I have been feeling extremely cold whereas in the past I was always quite warm, whatever the weather. Also, am experiencing acute pain in my right side, often worse at night. Have undergone numerous tests recently included eletrodiognosis and MRI scans. Motor neurone has been discounted as have all the usual illnesses associated with my symptoms however my neurologist is not keen to diagnose PPS and instead says I have chronic outstanding denervation changes which are consistent with my known past history of polio. Does anyone know if this is the same thing as PPS?

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2 Replies

  • rocky31676
    rocky31676 jan1955

    Posted

    Your neurologist needs education about PPS. 

    PPS is due to de-enenervation changes consistent with past history of Polio. 

    70-80% who had polio infection as kids get PPS after 20-35 years and beyond. 

  • Rafefa1974
    Rafefa1974 jan1955

    Posted

    If your EMG/NCC reports are suggestive of chronic denervation, then in presence of past history of polio, it means post polio. Further it can be confirmed by repeating same test and note discrepancy in it over the time. Repeat test may demonstrate involvement of more nerves.
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