Polymyalgia ?

Posted , 5 users are following.

Hello I am a newcomer to this site and just wondered if somebody could possilbly help me.

I was diagnoised with Fibromyaglia and M E  around 4 years ago. I was pretty healthy at the time, but have a viral infection and was left with this diagnosis by the doctor and a specialist in Fibro. Over the years I have gone from tramacet to tramadol and finally slow release oxicodone for the pain. About 3 months ago I started with a very stiff neck and pain in my actual arm joints, shoulders and hips, even with my slow release morphine I cannot get rid of this pain. I went to the doctors and was deemed to have hardly any vitamin d, I have had a intense vit d spray for 2 months that hasnt done much.

Last week I had to go back because this pain has got so much worse, the doctor now says he thinks my Fibro has turned into Polymyalgia.

Repeat blood tests have been done but Im not sure of the results yet as I cannot get an appoitment until 15th January, but I do know the vitamin d was still adsent.

Over the last 5 days my arms have been hurting so much I can hardly brush my hair, I also have pain in my knee joints. I have had a look on the internet (as you do) and saw this forum, so I wondered if anybody on here has the same sort of problems. Thank You Diane

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  • Posted

    Ditto what Eileen said. Both the Vit D info and Docs out of airy fairy land.

    I saw an internist at least 3 times, an orthopedist 3 times, a different orthopedist once, a rheumatologist (3 times) who insisted it was Fibromyalgia. So, either they had no clue or misdiagnosed me. I had Lyme tests, RA tests, CRP, SED rates, you name it, I was tested every which way. Was told to take Ibuprofen and Aspirin, which did not work, except to get a bleeding stomach. I switched to Tylenol; you should have seen me watch that clock for when I could dose myself again, despite the fact it barely made a dent in the pain. Then I was put on 700 mg Gabapentin, which only made me sleepy.

    THEN, 4 months into the symptoms, I found the rheumy I am with now, got 20 mgs of Prednisone and Bingo!

    I was very persistent and determined to find somebody to help me. I was lucky, I think, in having found her. 

    I urge you to be as big of a pest as I was.

    BTW: Regarding Emergency Room docs. My son in law, who lives far away, is an ER doc. When I told him my symptoms over the phone, he said, "Sounds like PMR." I could be wrong, but I think Emergency Room physicians are generalists, trained for most eventualities.

    • Posted

      Hi Paula

      Well I do intend to make a few visits to the doctors, I wont be put in a corner and told Ive got something that isnt responding to meds, after all its my stomach and body that has to deal with it.

      I am back at the doctors again in two weeks so I will update again, but thank you for helping and lettng me read your story. I am glad you have been lucky enough to stumble on this site.

      Diane

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