polymyalgia
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My Mother, who is in her seventies has had this condition for a year and a half now and her doctors (three at her surgery) have been less than helpful and could not even diagnose what she had, although in extreme pain, until I wrote to them and 'told them' what I thought she had. I have had no medical training but the symptoms seemed obvious to me as this is not a 'rare' illness. During her illness she has not been treated at all well and she has not even been called in for blood tests for over 9 months, she just gets a repeat prescription at her chemists each week. That is only because I insisted on this and negotiated with both the chemist and the Doctor because of my concern that she was forgetting to take the tablets. And that is my main concern. Since this illness, but before its diagnosis, I was slightly worried about her memory. Since diagnosis I am now extremely worried. The doctors keep 'fobbing me off' and are not taking it seriously and say 'it's probably the medication' but is this normal, everyone else I know with this illness has not had this.
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MrsO-UK_Surrey
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MrsO
Brighton_belle
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Brighton_belle
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Brighton_belle
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We asked our GP for further tests to find out wether this memory loss was independent of her GCA/steroids, we saw a Psychiatrist and then a Neurologist, the verdict in both cases- a RARE side effect of PMR/GCA and the tapering of steroids. May I suggest that you ask your GP for this kind of investigation because it would appear that unlike the main causes of DEMENTIA, this is a recoverable condition and can be improved with a higher doseage of predisolone.